Neuroendocrine Tumors (NETs): Discussions | Page 4

Support Group: Lung Cancer

Posted: Dec 16, 2023

Thank you so much for sharing your experience. My PET scan showed numerous spots in the...

https://connect.mayoclinic.org/comment/835101/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2023

I had 2 typical lung carcinoids diagnosed a little over a year ago. One was in...

https://connect.mayoclinic.org/comment/1056209/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2024

@aliatl Hi thanks for Reaply, sorry to here about your wife, she got Diogenes last summer...

https://connect.mayoclinic.org/comment/804697/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

I have an Acth producing tumer in lung if any one had similar case what was...

https://connect.mayoclinic.org/comment/803567/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 30, 2023

I have been taking octreotide injections for 4 years for lung NETs and have not had...

https://connect.mayoclinic.org/comment/1207164/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8 8:36pm

I do. I had a lung net removed In April. Best guy at Mayo is dr...

https://connect.mayoclinic.org/comment/771380/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9, 2022

Yes surgery soon for lung then checkups every 6 months showed bright on pet scan Thank...

https://connect.mayoclinic.org/comment/873237/

Discussion: Neuroendocrine tumor in small bowel with lymph nodes involved

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5, 2023

Yes, the tumor I had ablated was malignant (typical carcinoid). It was biopsied first. The microwave...

https://connect.mayoclinic.org/comment/1208685/

Discussion: Diagnosed with DIPNECH yesterday!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10 10:59pm

I went out of NETWORK and the area to get a second opinion from a NET...

https://connect.mayoclinic.org/comment/989286/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 31, 2023

It can sure be a frustrating journey to diagnosis, can’t it? Glad they figured yours out...

https://connect.mayoclinic.org/comment/1171342/

Discussion: How many doctors did you see to get to your NETS diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2024

Definitely ask for sedation for your biopsy. It's not pleasant. While still on the table while...

https://connect.mayoclinic.org/comment/1080156/

Discussion: Altitude change after lung biopsy/bronchoscopy

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 3, 2024

Lately, I have started coughing out of the blue for no reason. Has anyone else with...

https://connect.mayoclinic.org/comment/1066295/

Discussion: Describe your recovery from lung NET surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 11, 2024

Hi @gmapam I have lung NETS and have had unrelated diverticulitis several times in the past...

https://connect.mayoclinic.org/comment/883798/

Discussion: Recently diagnosed with a NET in my middle lobe of my right lung.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

I also have NET and DIPNECH. Both were found in August of 2024 when my tumor...

https://connect.mayoclinic.org/comment/1288119/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 23 10:19am

I am coughing up blood tinged phlegm every day. This is how it was found. At...

https://connect.mayoclinic.org/comment/1048206/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10, 2024

I also have slow growing lung nets in both lungs one has grown very slightly over...

https://connect.mayoclinic.org/comment/1328533/

Discussion: Anyone have lung NETs lining your pleura?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16 2:59pm

Hi , I have the exact same diagnosis and situation as you do. I have tumorlets...

https://connect.mayoclinic.org/comment/1397213/

Discussion: Biopsy showed DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20 10:18am

@pammy229 Hello Pamela and welcome to the NETs support group on Mayo Connect. This is a...

https://connect.mayoclinic.org/comment/1198172/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

I have breast cancer as well as lung NETs and DIPNECH. My breast cancer is unrelated;...

https://connect.mayoclinic.org/comment/1206124/

Discussion: Concerns after lobectomy for carcinoid tumor in lung

Support Group: Lung Cancer

Posted: Jan 7 1:28pm

Neuroendocrine Tumors (NETs) Support Group