Neuroendocrine Tumors (NETs): Discussions | Page 4

Hi @tammyv615 Finally someone else who had a lung tumor ablated! I can’t say the procedure...

https://connect.mayoclinic.org/comment/1071170/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2024

@californiazebra thank you so much for your message ❤️ when I had my first surgery to...

https://connect.mayoclinic.org/comment/1428019/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2025

I think you would be making another trip. I’d call and inquire. Your surgeron team should...

https://connect.mayoclinic.org/comment/772109/

Discussion: Might we have to Travel Twice to Mayo?

Support Group: Visiting Mayo Clinic

Posted: Nov 11, 2022

Hi, I also had a 10 cm lung NET (lobectomy in 2020, no spread to nodes),...

https://connect.mayoclinic.org/comment/1392999/

Discussion: Anyone have a small pancreatic IPMN cyst that turned out to be cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 13, 2025

Thanks Colleen. After 23 years fighting fires and 142 fires June this year had severe pneumonia...

https://connect.mayoclinic.org/comment/950022/

Discussion: Calling all Firefighters: The National Firefighter Registry for Cancer

Support Group: Cancer

Posted: Oct 19, 2023

Hello @blm1024 and welcome to the NETs group on Mayo Connect. We have several discussion groups...

https://connect.mayoclinic.org/comment/1350220/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2025

Just FYI, my NETs in my liver that is the largest tumor is metastatic from my...

https://connect.mayoclinic.org/comment/939449/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2023

Is the endometrium cancer NETs? If not, I’m not sure how they would be related unless...

https://connect.mayoclinic.org/comment/1223490/

Discussion: Relationship between endometrium cancer and DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 28, 2025

@nannybb ya mine is in right lung also .. is the other carcinoids also typical ones

https://connect.mayoclinic.org/comment/1449197/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2025

@californiazebra yes she's a lung nurse in local hospital where I'm having surgery

https://connect.mayoclinic.org/comment/1432683/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2025

Greetings....I am still standing and living a normal life at 85 with my disease in the...

https://connect.mayoclinic.org/comment/801669/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2023

A small nodule was discovered incidentally in an x-ray 10 years ago in my left lower...

https://connect.mayoclinic.org/comment/1056356/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2024

I just watched lunch with docs on YouTube from CCF carcinoid cancer foundation with Robert Ramirez...

https://connect.mayoclinic.org/comment/1417594/

Discussion: DO I need 2 teams if I have both Nets-lung and DIPNECH?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 17, 2025

@nannybb yes pneumonia is gone not sure about abcess but my lung specialist put me on...

https://connect.mayoclinic.org/comment/1442944/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 20, 2025

@sophiarose You’re very welcome! Here’s a a section from the Mayo informational page about afinitor (everolimus)...

https://connect.mayoclinic.org/comment/1004238/

Discussion: Afinitor - Anyone have pneumonitis as a side effect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2024

Hello, everyone. I just signed up for this group and hope I'm in the right place....

https://connect.mayoclinic.org/comment/656143/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 20, 2021

Hello @oilyproudnana and welcome. It looks like your biopsy confirmed lung NETs. Is that correct? I...

https://connect.mayoclinic.org/comment/1392531/

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2025

I am a 19+ year Stage IV Lung Cancer survivor because I was able to go...

https://connect.mayoclinic.org/comment/776728/

Discussion: Husband diagnosed: high grade carcinoma with neuroendocrine features

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 23, 2022

Yes 2nd opinion says it mimics a lung carcinoid (solid round nodule / slow growth)

https://connect.mayoclinic.org/comment/831614/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

@nana120 So they didn’t remove your lung NET? Or had it already metastasized when first discovered?

https://connect.mayoclinic.org/comment/939523/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2023

Neuroendocrine Tumors (NETs) Support Group