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Comments (900)
Hi, thank you! Yes, I do intend to address all my side effect issues with the...
https://connect.mayoclinic.org/comment/1103497/
Hi @dipnech67 I would be happy to speak with you. I just sent you a private...
https://connect.mayoclinic.org/comment/1055386/
Are you taking a treatment? So interesting, these various symptoms, like GERD! I had it for...
https://connect.mayoclinic.org/comment/1330063/
Hi Rose830, I had to look up Merkel Cell Cancinoma as I'm not familiar with it....
https://connect.mayoclinic.org/comment/844303/
@jessie1990 I was just going to tell you everything Colleen is saying. Everything they are doing...
https://connect.mayoclinic.org/comment/1455754/
Hi @ce1b I take Octreotide (similar to lanreotide) injections every 4 weeks for my lung NETs....
https://connect.mayoclinic.org/comment/896824/
My suggestions are very similar to the other comments. One thing I did to help was...
https://connect.mayoclinic.org/comment/990161/
Hello, my Mom is currently on a clinical trial involving a cancer peptide vaccine and nivo...
https://connect.mayoclinic.org/comment/873518/
What I did was to do a deep dive into the process. First I set my...
https://connect.mayoclinic.org/comment/1000033/
Hi tatteesmom3, are you seeing a NETS (neuroendocrine tumor) multidisiciplinary team or just a local oncologist...
https://connect.mayoclinic.org/comment/844936/
I, too, have high grade (2/3) metastatic NETs—liver, pancreas, lungs, bone, adrenal gland, parotid gland. I...
https://connect.mayoclinic.org/comment/811356/
Thank You Colleen, It was also a zoom meeting, so that didn't help......we live 4 and...
https://connect.mayoclinic.org/comment/671245/
So sorry to hear about all your issues. I have DIPNECH also, dx’d after my RML...
https://connect.mayoclinic.org/comment/1222859/
Hello! Very naive here about where I have been and how concerned I should be. Maybe...
https://connect.mayoclinic.org/comment/758149/
I have LiverNET and receive a CT and PET scan every 90 days. Here is some...
https://connect.mayoclinic.org/comment/1218736/
My NETs was found during an episode of jaundice, where a bile duct was blocked by...
https://connect.mayoclinic.org/comment/755807/
I'm not sure if this is where I should pose my question, but will give it...
https://connect.mayoclinic.org/comment/1277514/
My chemotherapy was difficult to deal with, it wasn’t immediate but accumulative effects were challenging. Fatigue,...
https://connect.mayoclinic.org/comment/1025991/
Wow--thanks for asking! On a practical level, radiation will be done at my local regional cancer...
https://connect.mayoclinic.org/comment/819982/
Maureen, good topic! I have been fortunate that I don't have to take a lot of...
https://connect.mayoclinic.org/comment/196545/
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