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Yes, it came back with a vengeance, it had metastasized to peritoneal lining, liver, gallbladder, bladder,...
https://connect.mayoclinic.org/comment/1350383/
I would appreciate the name of your Atlanta dr. I am recently diagnosed w metastatic neuroendocrine...
https://connect.mayoclinic.org/comment/1145370/
Thank you I did LACNETS a few weeks ago they were all a wealth of knowledge...
https://connect.mayoclinic.org/comment/1143715/
Hello @avawein You posted about finding some"hotspots" on your liver after having a CU64 dotatate. I...
https://connect.mayoclinic.org/comment/636362/
It was 1.4 by 1.3 so relatively small. It reduced a 10th if a centimeter and...
https://connect.mayoclinic.org/comment/1358502/
I have continually gotten my lanreotide and have MRIs with contrast on a regular basis for...
https://connect.mayoclinic.org/comment/1169863/
I had NET on the head of my pancreas so the surgery is different from yours....
https://connect.mayoclinic.org/comment/793161/
I have been diagnosed with pNET in December 2022. Grade 3 (Ki=18) with liver metastases (Stage4)....
https://connect.mayoclinic.org/comment/1035345/
Is there a pet scan That cat scan the body to see if there are any...
https://connect.mayoclinic.org/comment/1022418/
After my whipple procedure Mar 2020 my Chromogranin A and Serotonin levels remained higher than normal,...
https://connect.mayoclinic.org/comment/967519/
Many thanks for your response. I offer the following brief summary of Sharon's NET history. 1....
https://connect.mayoclinic.org/comment/744920/
I too have Gastrinomas had a perforated esophagus had major surgery to repair it. They discovered...
https://connect.mayoclinic.org/comment/1286959/
Hey Frogsong, They hadn’t heard back from the specialist yet, so they decided not to do...
https://connect.mayoclinic.org/comment/847612/
Big hugs to you. I’m glad you are feeling better and have had some positive outcomes...
https://connect.mayoclinic.org/comment/846916/
Hello @kate777 I'd like to join @colleenyoung and @char1962, in welcoming you to Connect. I've had...
https://connect.mayoclinic.org/comment/777407/
I just had scans on Monday. Everything is stable, and they even noted some shrinkage in...
https://connect.mayoclinic.org/comment/1123512/
Allow me to be the acronym buster for this discussion: - SSA = Somatostatin analogue https://www.cancerresearchuk.org/about-cancer/neuroendocrine-tumours-nets/treatment/somatostatin-analogues/what-are...
https://connect.mayoclinic.org/comment/1001311/
I was diagnosed with NET’s December, 2022. Started the same, small intestines and spread to the...
https://connect.mayoclinic.org/comment/842035/
My experience on (Beta) PRRT was - tumours taking off, so they took me off PRRT....
https://connect.mayoclinic.org/comment/1408799/
I am very interested in this as I am in a similar situation. I’m in a...
https://connect.mayoclinic.org/comment/1338805/
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