Neuroendocrine Tumors (NETs): Discussions | Page 33

I have Malignant Neuroendocrine Tumors of the Lung and have been in treatment with Sandostatin LAR...

https://connect.mayoclinic.org/comment/969442/

Discussion: Octreotide Injections - Skipping One or More?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 23, 2023

Hi, I had two very small typical carcinoids removed Nov. 21 They took my entire lower...

https://connect.mayoclinic.org/comment/989821/

Discussion: Questions I should ask before surgery for Lung NETs?

Support Group: Lung Cancer

Posted: Jan 1, 2024

@nana120 I wasn't told of any dietary restrictions when I started my octreotide injections, but maybe...

https://connect.mayoclinic.org/comment/937831/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 28, 2023

Hi Mike @mikecincy Sorry to hear you've joined the NETs club. It looks like you're doing...

https://connect.mayoclinic.org/comment/885633/

Discussion: NET found by colonoscopy. What to expect and how should I approach

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

I had just recovered from my mastectomies and was pulling myself back together when my husband...

https://connect.mayoclinic.org/comment/232724/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

Thanks for the reminder to fill you in. I did ask my IR who did my...

https://connect.mayoclinic.org/comment/957412/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2023

Hello, I have a stage 3 lung NET. I found a lot of good information on...

https://connect.mayoclinic.org/comment/998253/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2024

While my tumors have been located and biopsies and I’m on my seventh injection of Lanreotide...

https://connect.mayoclinic.org/comment/933719/

Discussion: Carcinoid syndrome; NET not found

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 21, 2023

Hi I was diagnosed a year ago with NET. It showed up with multiple lesions in...

https://connect.mayoclinic.org/comment/854586/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2023

That’s great it improved your allergies! In my allergy testing, it looked like I was allergic...

https://connect.mayoclinic.org/comment/1330268/

Discussion: DIPNCEH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2025

Sakota- Here is a link to a great explanation to your question. It also show a...

https://connect.mayoclinic.org/comment/232792/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 14, 2018

I was a full time municipal firefighter/Paramedic & Engineer ~ What I believe was the biggest...

https://connect.mayoclinic.org/comment/951122/

Discussion: Calling all Firefighters: The National Firefighter Registry for Cancer

Support Group: Cancer

Posted: Oct 20, 2023

Yes, they want to do a needle biopsy. They say there slow growing so they want...

https://connect.mayoclinic.org/comment/1169811/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2024

Hello Jeff @guyjeff123, Many of us know that we'll face this conversation with our doctors at...

https://connect.mayoclinic.org/comment/1470793/

Discussion: Anyone have anything to share on Neuroendoscopic SCLC? In hospice

Support Group: Lung Cancer

Posted: Dec 30, 2025

@gprior Hi Gloria. Sorry you have a tumor by your heart and need more surgery. No,...

https://connect.mayoclinic.org/comment/1142729/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2024

mir123 I was advised by thesecondopinion.org to be treated for my NET of the breast with...

https://connect.mayoclinic.org/comment/945761/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 11, 2023

Hi. I was very lucky. I didn’t have to have chemo or radiation. I just had...

https://connect.mayoclinic.org/comment/1046358/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2024

dpepsi247 - Good morning. I am so sorry to hear that your doctor was short with...

https://connect.mayoclinic.org/comment/816939/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2023

Hi @andy2020 You have really had a difficult time getting a diagnosis. I can understand how...

https://connect.mayoclinic.org/comment/810693/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2023

My sister returned to hospital on Tuesday with severe chest pain . They were afraid of...

https://connect.mayoclinic.org/comment/1021153/

Discussion: Atypical pulmonary carcinoid

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 23, 2024

Neuroendocrine Tumors (NETs) Support Group