Neuroendocrine Tumors (NETs): Discussions | Page 3

Just off a virtual call with the doctors. They are putting me on a regimen of...

https://connect.mayoclinic.org/comment/805822/

Discussion: Newly diagnosed - neuroendocrine tumor in intestines

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 3, 2023

I also have NET’s in my liver, I am on monthly octreotide injections. I have not...

https://connect.mayoclinic.org/comment/883630/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

Thanks for your reply. Have you been getting MRI's for the past 1 1/2 years to...

https://connect.mayoclinic.org/comment/1165494/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2024

For all of you who are currently taking Octreotide for carcinoid syndrome, by injection, there is...

https://connect.mayoclinic.org/comment/726705/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 14, 2022

Hello @char1962, You mentioned that you are getting injections. Are the injections you mentioned, PRRT treatments,...

https://connect.mayoclinic.org/comment/748523/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2022

UCLA NETs team is coordinating with my local breast oncologist. Works great so I can get...

https://connect.mayoclinic.org/comment/1179348/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2024

I can only answer for lung. If you have a carcinoid tumor in your lung, the...

https://connect.mayoclinic.org/comment/1254782/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10 12:20pm

@jukebox42 Sorry you feel stressed. Is this a new diagnosis for you? I posted about octreotide...

https://connect.mayoclinic.org/comment/1254968/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10 4:47pm

Yes, I would say your throat clearing is from DIPNECH. Octreotide fixed that for me. Yes,...

https://connect.mayoclinic.org/comment/1330274/

Discussion: DIPNCEH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19 12:56am

I didn’t have success with my Dotatate scan either. I recently started the octreotide shots and...

https://connect.mayoclinic.org/comment/1358995/

Discussion: Recently diagnosed with a NET in my middle lobe of my right lung.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 29 7:13am

I am receiving octreotide injections monthly. They are trying to diagnose the cause of the nausea,...

https://connect.mayoclinic.org/comment/705227/

Discussion: Any NET patients from NYC

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2022

I have had 5 octreotide injections so far and have been loosing weight ( which I...

https://connect.mayoclinic.org/comment/919026/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 26, 2023

Yes. Octreotide is known to increase blood sugar. Many have to go on metformin to control...

https://connect.mayoclinic.org/comment/1261727/

Discussion: Liver function (birirubin, globulin, glucose, iron) and Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19 8:58am

Hello @carolc66 and welcome to the NETs discussion group on Mayo Connect. While I've had three...

https://connect.mayoclinic.org/comment/748669/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2022

My Journey of what I have done Liver resection Lanreotide Octreotide Liver embolizations both sides Afinitor...

https://connect.mayoclinic.org/comment/1328140/

Discussion: First scan after 3 months of lanreotidec

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16 6:49am

Thanks for your post! I thought I might be the only one with reactions to octreotide!...

https://connect.mayoclinic.org/comment/994669/

Discussion: Rash/Hives with Octreotide injection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2024

Were your tumors growing while you were on Octreotide and that is why you were given...

https://connect.mayoclinic.org/comment/1344050/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 8 9:21pm

My husband was switched from Octreotide to Lanreoride 4 mos. ago & he said he has...

https://connect.mayoclinic.org/comment/1060449/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1, 2024

My husband is on 28 day octreotide shots in addition to the cap/tem. No hypoglycemic episodes...

https://connect.mayoclinic.org/comment/943958/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2023

I did the Lanreotide injections for 3 months Then switched To Octreotide which I am currently...

https://connect.mayoclinic.org/comment/819293/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2023

Neuroendocrine Tumors (NETs) Support Group