Neuroendocrine Tumors (NETs) Support Group | Page 3

@mlveal, I'm sorry to hear that your friend has been diagnosed with neuroendocrine carcinoma (NEC). You...

https://connect.mayoclinic.org/comment/1578223/

Discussion: Neuroendocrine tumor (NET) vs neuroendocrine carcinoma (NEC)

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19 10:25am

@momo5512, just adding on to what @lindabees said, my pnet was found back in October 2004....

https://connect.mayoclinic.org/comment/1554435/

Discussion: New to NET: Not sure what to expect from here

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19 12:21pm

I would ask the Dr to schedule a dotatate Pet scan to search for a primary...

https://connect.mayoclinic.org/comment/1568792/

Discussion: New to the group and cancer journey: Liver NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 7 8:27am

I have Neuro endocrine cancer in a 3 cm tumor near the tail of my pancreas,...

https://connect.mayoclinic.org/comment/1572277/

Discussion: Why do I get so tired so easy?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 11 2:46pm

Diagnosed with pancreatic NET in 2023. I have fatigue much of the time, along with occasional...

https://connect.mayoclinic.org/comment/1557621/

Discussion: PNET: What helps with fatigue and weakness?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 23 11:07am

Jeannie, take a deep breath, you are among many of us that have gone down this...

https://connect.mayoclinic.org/comment/1068055/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 14, 2024

Hi @beaglebass, you’re asking great questions. I’m tagging a few members like @tinerobison @donnarushing55 @vtn @lizzyeastwood...

https://connect.mayoclinic.org/comment/1065092/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 9, 2024

We had a consultation with a NET oncologist He recommended taking Octreotide as he had patients...

https://connect.mayoclinic.org/comment/1060045/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1, 2024

A team at MAYO have looked at my scans and test results I have sent them...

https://connect.mayoclinic.org/comment/1041280/

Discussion: Is enucleation appropriate for me?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 27, 2024

Thank you Colleen, I realized there is a separate NET group after my post, and tried...

https://connect.mayoclinic.org/comment/1036219/

Discussion: Newly Diagnosed Pancreatic NET awaiting Distal Pancrectomy

Support Group: Pancreatic Cancer

Posted: Mar 18, 2024

Ask your team of doctors if CAP/TEM chemo pill is an option for NET. My wife...

https://connect.mayoclinic.org/comment/1035319/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2024

Hello @bsteph9210, Bethany, and welcome to the NETs support group on Mayo Connect. I see that...

https://connect.mayoclinic.org/comment/1024574/

Discussion: Does Mayo Clinic do insulinoma testing?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28, 2024

@donnarushing55 and @tinerobison, I moved your questions about celiac plexus nerve block related to pancreatic NETs...

https://connect.mayoclinic.org/comment/1022459/

Discussion: Anyone had plexus nerve block for cancer pain?

Support Group: Pancreatic Cancer

Posted: Feb 25, 2024

I am glad that you are seeking another opinion. Yes I too have felt overwhelmed by...

https://connect.mayoclinic.org/comment/1004522/

Discussion: PNET on tail of pancreas with numerous bilobar hepatic metastases

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2024

@tinerobison My wife was diagnosed with NET in April 22, with about a 3x5cm mass on...

https://connect.mayoclinic.org/comment/997134/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 14, 2024

I was diagnosed with stage 4 pancreatic NET with liver metastasis in 8/22. I learned what...

https://connect.mayoclinic.org/comment/995254/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2024

My wife’s case is similar to yours, as she was diagnosed with NET in April 2022....

https://connect.mayoclinic.org/comment/971625/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 28, 2023

Hi Joy, each case of NET is different. I can share our case to give you...

https://connect.mayoclinic.org/comment/952987/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2023

The one that was in the portion of the pancreas pathology repor says it was a...

https://connect.mayoclinic.org/comment/935713/

Discussion: Follow up surgery for PNET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2023

Definitely keep your follow up. If you feel it’s something you need to be seen for...

https://connect.mayoclinic.org/comment/924110/

Discussion: Type 1 Neuroendocrine Tumor with no risk: What should I ask doctor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 4, 2023