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Comments (268)
They are flushing versus hot flashes. Flushing just turns you red, but you do not sweat....
https://connect.mayoclinic.org/comment/1203269/
This is my 6 years trying to get information for having Neuroendocrine Cancer, lung Nets! I...
https://connect.mayoclinic.org/comment/1203278/
Hi @pammy229 I’m glad you decided to go to Mayo and will undoubtedly be hooked up...
https://connect.mayoclinic.org/comment/1198299/
Thank you for responding. I had no symptoms. But I had a positive colo-guard. Then I...
https://connect.mayoclinic.org/comment/1194306/
There are only about 300 documented cases of DIPNECH which is why most doctors have never...
https://connect.mayoclinic.org/comment/1205680/
Hi @cmc188 I have 50+ lung NETs tumors across both lungs. I also have DIPNECH (really...
https://connect.mayoclinic.org/comment/1199984/
My fiance was diagnosed with NETs in Sept of this year after 3 ED visits with...
https://connect.mayoclinic.org/comment/1197766/
I have been taking octreotide injections for 4 years for lung NETs and have not had...
https://connect.mayoclinic.org/comment/1207164/
I have Lungs NETS in both lungs. Recent growth, small amount now diagnosed with DIPNECH. I...
https://connect.mayoclinic.org/comment/1205143/
It is interesting, isn’t it? However, I didn’t have those allergy symptoms like sneezing, etc. several...
https://connect.mayoclinic.org/comment/1205467/
Hello @cmc188 and welcome to Connect. I would like to introduce you to @californiazebra and @triveraderubio,...
https://connect.mayoclinic.org/comment/1199781/
I’ve been taking octreotide injections for DIPNECH and lung NETs for 4 years. No GI issues...
https://connect.mayoclinic.org/comment/1199060/
Hello I have a couple of NETs tumors. One in the lung one in the mediastinum....
https://connect.mayoclinic.org/comment/1198328/
No wheezing or shortness of breath, however I had coughed up blood maybe 4 times in...
https://connect.mayoclinic.org/comment/1198235/
@rachismarie Sorry to hear about all you’re going thru. I understand how scary it can all...
https://connect.mayoclinic.org/comment/1181823/
Hi @splendrous 2008-2010: they didn't know what the 50+ nodules were, benign or cancer, so many...
https://connect.mayoclinic.org/comment/1179339/
As a GI nurse for 32 years, now retired. I can honestly say that no amount...
https://connect.mayoclinic.org/comment/1175814/
Hopefully there is someone out there still monitoring this. I have chronic NET that started in...
https://connect.mayoclinic.org/comment/1171106/
@sophiarose I’ve been taking octreotide injections for lung NETs and DIPNECH for 3.5 years and it...
https://connect.mayoclinic.org/comment/1181820/
Hello @breck and welcome to Mayo Connect. I see that this is your first post and...
https://connect.mayoclinic.org/comment/1169567/
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