Neuroendocrine Tumors (NETs) Support Group

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Comments (569)

If the injection is Lanreotide every 28! I did 3 injections and had to switch to...

https://connect.mayoclinic.org/comment/1197109/

Discussion: Stage 4 Carcinoid tumor: What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 25, 2024

Thank you very much! Well it was partial resection around 50 cm with ileocecal valve. I...

https://connect.mayoclinic.org/comment/1194019/

Discussion: Still have symptoms after surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 20, 2024

I have had Scans read wrong I think private places don’t really know what they are...

https://connect.mayoclinic.org/comment/1184710/

Discussion: What causes differences in reading of CAT Scan and MRI imaging?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 5, 2024

The treatments are induced by IV, it takes about 5 hours total. Starts with an amino...

https://connect.mayoclinic.org/comment/1283718/

Discussion: NET in jejunum spread to liver: Treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 17 5:27am

PRRT ( peptide receptor radionuclide therapy) is a radiation treatment.. I was on Ocreotide injections for...

https://connect.mayoclinic.org/comment/1258508/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15 10:34am

All forms of nets are still pretty rare but more cases are being diagnosed all the...

https://connect.mayoclinic.org/comment/1296399/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4 11:08am

After being on Ocreotide for almost 2 years a few of my tumors were still growing,...

https://connect.mayoclinic.org/comment/1346238/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 12 5:07am

I do not have a stent, the PRRT treatment I received was called Lutathera, all 4...

https://connect.mayoclinic.org/comment/1313017/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26 6:22am

Funny story went to the hospital years ago and they never found anything other than an...

https://connect.mayoclinic.org/comment/1047775/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 9, 2024

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