Neuroendocrine Tumors (NETs) Support Group

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Comments (438)

Yes I am actually not at a clinic but a hospital. They have done a CT,...

https://connect.mayoclinic.org/comment/803331/

Discussion: Neuroendocrine tumor: What tests are used for diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 29, 2023

My wife @kim1965 was diagnosed with NET on tail of pancreas and numerous tumors on liver...

https://connect.mayoclinic.org/comment/802307/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2023

My wife was diagnosed with NET in April 2022, with mass on tail of pancreas, and...

https://connect.mayoclinic.org/comment/797689/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2023

My wife, @Kim1965, was diagnosed with NET April 2022, with mass on tail of pancreas and...

https://connect.mayoclinic.org/comment/793540/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2023

Hello everyone. New to everything. Stage 4 but what is NET? Diagnosis is Neuroendocrine pancreatic tumor...

https://connect.mayoclinic.org/comment/776776/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 23, 2022

@sturns, I'm tagging a few other pancreatic NET members like @ronregency @klpetts @titansmistress @kate12345 @elm60 to...

https://connect.mayoclinic.org/comment/775083/

Discussion: Pituitary and pNET: Can't do the things I love anymore

Support Group: Brain Tumor

Posted: Nov 19, 2022

Welcome @kt348. Finding out that you have cancer sends one into a tailspin. It's so hard...

https://connect.mayoclinic.org/comment/762448/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 17, 2022

3 weeks ago I had a MRI and it found a tumour on the tail of...

https://connect.mayoclinic.org/comment/692355/

Discussion: Any NET patients from NYC

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 23, 2022

Hello @ronregency, I appreciate that you continue to share your journey with Pancreatic Net. If you...

https://connect.mayoclinic.org/comment/257020/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2020

@ceefer I am doing great thanks. But, it was a struggle to get here. I experienced...

https://connect.mayoclinic.org/comment/1499342/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6 9:39am

@mdethardt: I try to stay informed on PRRT Lutathera infusions and the results. I can’t find...

https://connect.mayoclinic.org/comment/1489040/

Discussion: Finished PRRT and I'm wondering about others' results.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22 5:07pm

@chaplaindan In addition to the previous post (well done) - Based on my wife's battle with...

https://connect.mayoclinic.org/comment/1464472/

Discussion: Anyone had a significant difference between a CT and MRI reading?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 20, 2025

Hello were you prescribed other treatments after PRRT? My husband will be doing PRRT soon but...

https://connect.mayoclinic.org/comment/1383995/

Discussion: Questions for surgeon-considerations choosing PRRT or surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1, 2025

I am aware. My husband died from pancreatic cancer (adenocarcinoma) the aggressive pdac . Our son...

https://connect.mayoclinic.org/comment/1381475/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 28, 2025

Hello @tjstaufr and welcome to the NETs support group on Mayo Connect. In another post, I...

https://connect.mayoclinic.org/comment/1366135/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 8, 2025

You should ask your doctor first to test your Serotonin levels when they do your 28...

https://connect.mayoclinic.org/comment/1357948/

Discussion: Should NET w/liver met patient stop rx that has Seratonin?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2025

Hey all. My husband was diagnosed with NET that metastasized to liver 5 years ago. Since...

https://connect.mayoclinic.org/comment/1356472/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2025

I thought enucleation referred to eye surgery. The terms I heard for pancreatic surgery were distal...

https://connect.mayoclinic.org/comment/1344388/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 9, 2025

Actually he had already had his pancreatic primary removed by a net specialist surgeon at Stanford....

https://connect.mayoclinic.org/comment/1338518/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 30, 2025

Yes, we are seeing the only net specialist in town at UCSD. The Dr. said no...

https://connect.mayoclinic.org/comment/1336768/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 28, 2025

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