Neuroendocrine Tumors (NETs) Support Group | Page 2

My husband has multiple NETs in the liver and the primary site is in the small...

https://connect.mayoclinic.org/comment/1208254/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2025

How do I know I have NETS? Surgeon who did a bio on small intestine. Results...

https://connect.mayoclinic.org/comment/1353009/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21, 2025

Hi mbg20, My husband has recently had a small bowel resection on Feb 27. He originally...

https://connect.mayoclinic.org/comment/830442/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2023

I had a dototate scan. A regular ct scan couldn’t see it in my small intestine....

https://connect.mayoclinic.org/comment/1256290/

Discussion: Diagnosing small bowel NETs with carcinoid syndrome

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 12, 2025

@thalverson, in addition to the helpful post from @beech18bob, I'm tagging fellow NETs members who have...

https://connect.mayoclinic.org/comment/953199/

Discussion: Anyone suffered with diarrhea 3 mos after surgery small intestine NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2023

@tomrennie, I have stage 4 neoindcrine cancer. The original tumor was blocking my small intestine and...

https://connect.mayoclinic.org/comment/1606353/

Discussion: PRRT Treatment: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 25 6:50pm

After about ten years of increasing abdominal bloating, pain, and vomiting, Mayo Jacksonville diagnosed carcinoids in...

https://connect.mayoclinic.org/comment/844140/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 16, 2023

https://connect.mayoclinic.org/comment/775875/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2022

@bearose Something I learned is—to be careful about loading in too much fiber if constipated and...

https://connect.mayoclinic.org/comment/1443952/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Nov 21, 2025

I was in for a healthy heart check and spots were seen my liver. I promptly...

https://connect.mayoclinic.org/comment/812546/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2023

Small intestine surgery in 1998, liver surgery in 2016, PRRT beginning this year. Two treatments, two...

https://connect.mayoclinic.org/comment/728930/

Discussion: PRRT for NETs: Questioning whether I should continue or not

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2022

Recently diagnosed with Pt4 and Pn1 grade 1 of small intestine. I am thinking stage 3...

https://connect.mayoclinic.org/comment/1376298/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 21, 2025

My 5-hiatal test came back 5.8 normal range. My symptoms getting worse, tomorrow I’m taking the...

https://connect.mayoclinic.org/comment/797731/

Discussion: Neuroendocrine tumor: What tests are used for diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2023

Hi and thank you for sharing your story . I was wondering about the size, grade...

https://connect.mayoclinic.org/comment/1238736/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2025

https://connect.mayoclinic.org/comment/820356/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 3, 2023

My husband also has NET in small intestine and liver. Can someone tell me what symptoms...

https://connect.mayoclinic.org/comment/1425989/

Discussion: NETs with Liver metastasis: starting lanreotide injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 29, 2025

@jayace2430 hi I had surgery in 2009 I had to have part of my liver removed...

https://connect.mayoclinic.org/comment/1529164/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17 1:55pm

I would ask the Dr to schedule a dotatate Pet scan to search for a primary...

https://connect.mayoclinic.org/comment/1568792/

Discussion: New to the group and cancer journey: Liver NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 7 8:27am

Hello @dbamos1945, I understand that you are looking to connect with others who have had NET...

https://connect.mayoclinic.org/comment/775970/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2022

@hopeful33250 I had what I thought was a bad stomach bug, turned out to be a...

https://connect.mayoclinic.org/comment/1425292/

Discussion: NETs with Liver metastasis: starting lanreotide injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 28, 2025