Neuroendocrine Tumors (NETs): Discussions | Page 1

Hi and thank you for sharing your story . I was wondering about the size, grade...

https://connect.mayoclinic.org/comment/1238736/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16 10:18pm

Hi, and thank you for your kind words. My husband is the patient. They told us...

https://connect.mayoclinic.org/comment/1284074/

Discussion: NET in the jejunum spread to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: 3 days ago

After about ten years of increasing abdominal bloating, pain, and vomiting, Mayo Jacksonville diagnosed carcinoids in...

https://connect.mayoclinic.org/comment/844140/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 16, 2023

My 5-hiatal test came back 5.8 normal range. My symptoms getting worse, tomorrow I’m taking the...

https://connect.mayoclinic.org/comment/797731/

Discussion: Neuroendocrine tumor: What tests are used for diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2023

I was in for a healthy heart check and spots were seen my liver. I promptly...

https://connect.mayoclinic.org/comment/812546/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2023

Small intestine surgery in 1998, liver surgery in 2016, PRRT beginning this year. Two treatments, two...

https://connect.mayoclinic.org/comment/728930/

Discussion: PRRT for NETs: Questioning whether I should continue or not

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2022

https://connect.mayoclinic.org/comment/775875/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2022

https://connect.mayoclinic.org/comment/820356/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 3, 2023

Hello @dbamos1945, I understand that you are looking to connect with others who have had NET...

https://connect.mayoclinic.org/comment/775970/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2022

My husband has a neuroendocrine tumor in the small intestine found by accident as they were...

https://connect.mayoclinic.org/comment/1272924/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2 8:33pm

Hi! I am also getting 4th mo SamotulineDepot injections due to small intestine NET primary with...

https://connect.mayoclinic.org/comment/810312/

Discussion: What's your NETs treatment and surveillance protocol?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2023

i have half of my colon removed and my small intestine removed the only problem i...

https://connect.mayoclinic.org/comment/1251259/

Discussion: Anyone dealing with Carcinoid NETs with Diabetes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5 5:07pm

My husband also has one in the small intestine that metastasized to the liver & spine,...

https://connect.mayoclinic.org/comment/885632/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

TY. Interesting my oncologist didn't comment on replacing my liver as I have a similar situation...

https://connect.mayoclinic.org/comment/952673/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2023

I was diagnosed with NETs in November 2015 following small intestine resection surgery. I have been...

https://connect.mayoclinic.org/comment/843592/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 15, 2023

I’m stage IV grade 2. Neuroendocrine, Primary in small intestine, metastatic to liver and other areas....

https://connect.mayoclinic.org/comment/812339/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2023

Hi @james8117, those are good questions to be asking as you prepare for surgery of your...

https://connect.mayoclinic.org/comment/767318/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2022

My husband has a neuroendocrine tumor in the small intestine found by accident as they were...

https://connect.mayoclinic.org/comment/1272927/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2 8:35pm

I, too, am very interested in learning more about nutrition/diet to know what to eat or...

https://connect.mayoclinic.org/comment/275685/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2019

Lots of information about these tests on the internet. My surgeons and Oncologist go straight to...

https://connect.mayoclinic.org/comment/1256144/

Discussion: Diagnosing small bowel NETs with carcinoid syndrome

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 12 10:07am

Neuroendocrine Tumors (NETs) Support Group