Neuroendocrine Tumors (NETs): Discussions | Page 2

I just pulled this from Mayo's website: "Octreotide injection is used to treat severe diarrhea and...

https://connect.mayoclinic.org/comment/1345945/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 11, 2025

Yes he has been on the OCTREOTIDE monthly injections for 12 months now

https://connect.mayoclinic.org/comment/887919/

Discussion: Looking for information on CAPTEM treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 30, 2023

I have been successfully getting octreotide monthly shots for my liver Neuroendocrine diagnosis for 9 months...

https://connect.mayoclinic.org/comment/1550135/

Discussion: Blood Clots, DVT and Neuroendocrine Cancer - Be aware.

Support Group: Neuroendocrine Tumors (NETs)

Posted: 5 hours ago

I have been taking Octreotide LAR 30mg for 8 years. I also have muscle fatigue and...

https://connect.mayoclinic.org/comment/1506871/

Discussion: What helps with muscle aches and weakness after Lanreotide injections?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15 10:50pm

Hi I did 4 PRRT treatments with octreotide Did a PET scan and a MRI It...

https://connect.mayoclinic.org/comment/1303390/

Discussion: Update: Lutethera treatment is over

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2025

Octreotide lowered my blood pressure and heart rate. Also causes fatigue.

https://connect.mayoclinic.org/comment/1026432/

Discussion: Anyone have problems with elevated blood pressure while on Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 3, 2024

I’m so glad you posted this. I receive octreotide injections with my PRRT treatments. I had...

https://connect.mayoclinic.org/comment/846908/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2023

I’m not familiar with UK meds but wondering if Octreotide injections would be an available alternative?

https://connect.mayoclinic.org/comment/1333593/

Discussion: Neuroendocrine Lanreotide (Advanz Pharma) Problems

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2025

Sorry I registered but can not login. I am on Octreotide LAR 30mg

https://connect.mayoclinic.org/comment/90134/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2016

I have been on Octreotide for about 7 months, I haven’t missed an injection during that...

https://connect.mayoclinic.org/comment/967687/

Discussion: Octreotide Injections - Skipping One or More?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 19, 2023

@laree I would assume the maintenance shots are Octreotide or Lanreotide injections done on a monthly...

https://connect.mayoclinic.org/comment/1401182/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25, 2025

@sarahfloranne, Sorry to hear you’ve had this side effect to the Lanreotide - which unfortunately is...

https://connect.mayoclinic.org/comment/876306/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10, 2023

,@sandy23, is your husband on clinical trial to be able to go on Lutathera oxodotreotide (...

https://connect.mayoclinic.org/comment/939864/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2023

Is there any other treatment than OCTREOTIDE shots or any treatment in conjunction with the OCTROTIDE...

https://connect.mayoclinic.org/comment/1232558/

Discussion: Relationship between endometrium cancer and DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8, 2025

@californiazebra I remember you from this time last year. I see the date on your post,...

https://connect.mayoclinic.org/comment/1540701/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1 7:58pm

@pennypowell Lanreotide is similar to Octreotide and should help with symptoms. Many members of this discussion...

https://connect.mayoclinic.org/comment/799802/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2023

I don't know anything about Panama, but there are generic versions of Lanreotide that might cost...

https://connect.mayoclinic.org/comment/1415200/

Discussion: Cost of treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 14, 2025

Since 2018 I have small bowel NET/carcinoid, met to the liver. Surgery removed the primary tumor...

https://connect.mayoclinic.org/comment/1537401/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 28 3:04pm

I have been on Octreotide injections every 28 days for 2 years. Just had my first...

https://connect.mayoclinic.org/comment/1514261/

Discussion: Has anyone taken Prolia for bone loss after NETs treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25 9:35am

I will "hope" with you that this new treatment works. Is he still taking the Octreotide...

https://connect.mayoclinic.org/comment/887684/

Discussion: Looking for information on CAPTEM treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 30, 2023

Neuroendocrine Tumors (NETs) Support Group