Neuroendocrine Tumors (NETs): Discussions | Page 2

@pavlina60 Thank you .wish u a healthy life. My sister has completed her Etoposide and Cisplatin...

https://connect.mayoclinic.org/comment/1409683/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: 6 days ago

I believe that Octreotide scan is older and has been replaced by PET scan these days....

https://connect.mayoclinic.org/comment/1388323/

Discussion: I saw the surgeon. More confused than ever.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 6 8:08pm

Yes he has been on the OCTREOTIDE monthly injections for 12 months now

https://connect.mayoclinic.org/comment/887919/

Discussion: Looking for information on CAPTEM treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 30, 2023

Hi I did 4 PRRT treatments with octreotide Did a PET scan and a MRI It...

https://connect.mayoclinic.org/comment/1303390/

Discussion: Update: Lutethera treatment is over

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13 1:48pm

Hi, interesting. What is a octreotide scan then? I read that it helps find them...well, I'll...

https://connect.mayoclinic.org/comment/1388191/

Discussion: I saw the surgeon. More confused than ever.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 6 3:48pm

I’m so glad you posted this. I receive octreotide injections with my PRRT treatments. I had...

https://connect.mayoclinic.org/comment/846908/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2023

I have been on Octreotide for about 7 months, I haven’t missed an injection during that...

https://connect.mayoclinic.org/comment/967687/

Discussion: Octreotide Injections - Skipping One or More?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 19, 2023

Sorry I registered but can not login. I am on Octreotide LAR 30mg

https://connect.mayoclinic.org/comment/90134/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2016

I’m not familiar with UK meds but wondering if Octreotide injections would be an available alternative?

https://connect.mayoclinic.org/comment/1333593/

Discussion: Neuroendocrine Lanreotide (Advanz Pharma) Problems

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23 2:51pm

Hi Cassandra my husband is in the same way you are, very sad, he has a...

https://connect.mayoclinic.org/comment/1394114/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15 7:54pm

,@sandy23, is your husband on clinical trial to be able to go on Lutathera oxodotreotide (...

https://connect.mayoclinic.org/comment/939864/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2023

Octreotide lowered my blood pressure and heart rate. Also causes fatigue.

https://connect.mayoclinic.org/comment/1026432/

Discussion: Lanreotide and blood pressure

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 3, 2024

I have hair loss not sure if it is from PRRT treatment or the octreotide treatment...

https://connect.mayoclinic.org/comment/1389916/

Discussion: PRRT and hair loss

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 8 11:42pm

@kdubbs Welcome to the DIPNECH family as it’s rare. I have both DIPNECH and lung NETs...

https://connect.mayoclinic.org/comment/1391732/

Discussion: Biopsy showed DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 11 2:28pm

Is there any other treatment than OCTREOTIDE shots or any treatment in conjunction with the OCTROTIDE...

https://connect.mayoclinic.org/comment/1232558/

Discussion: Relationship between endometrium cancer and DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8 7:13pm

I did PRRT with octreotide Finished treatment in November of 2024 I am still receiving Octreotide...

https://connect.mayoclinic.org/comment/1329589/

Discussion: PRRT and Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18 6:21am

I will "hope" with you that this new treatment works. Is he still taking the Octreotide...

https://connect.mayoclinic.org/comment/887684/

Discussion: Looking for information on CAPTEM treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 30, 2023

@sarahfloranne, Sorry to hear you’ve had this side effect to the Lanreotide - which unfortunately is...

https://connect.mayoclinic.org/comment/876306/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10, 2023

Makes sense on why you want to try the short acting octreotide. I hope insurance covers...

https://connect.mayoclinic.org/comment/1128990/

Discussion: Short acting Ocreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2024

@pennypowell Lanreotide is similar to Octreotide and should help with symptoms. Many members of this discussion...

https://connect.mayoclinic.org/comment/799802/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2023

Neuroendocrine Tumors (NETs) Support Group