Neuroendocrine Tumors (NETs): Discussions | Page 2

I’m so glad you posted this. I receive octreotide injections with my PRRT treatments. I had...

https://connect.mayoclinic.org/comment/846908/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2023

There is a new oral version of octreotide that is used to control carcinoid syndrome. Perhaps...

https://connect.mayoclinic.org/comment/1334002/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24 8:39am

Sorry I registered but can not login. I am on Octreotide LAR 30mg

https://connect.mayoclinic.org/comment/90134/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2016

Octreotide lowered my blood pressure and heart rate. Also causes fatigue.

https://connect.mayoclinic.org/comment/1026432/

Discussion: Lanreotide and blood pressure

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 3, 2024

I take octreotide injections for lung NETs and DIPNECH to control respiratory symptoms (works great) and...

https://connect.mayoclinic.org/comment/1346205/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 11 11:01pm

Is there any other treatment than OCTREOTIDE shots or any treatment in conjunction with the OCTROTIDE...

https://connect.mayoclinic.org/comment/1232558/

Discussion: Relationship between endometrium cancer and DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8 7:13pm

Makes sense on why you want to try the short acting octreotide. I hope insurance covers...

https://connect.mayoclinic.org/comment/1128990/

Discussion: Short acting Ocreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2024

That is wonderful news I get my second Followup scans on July 3 What are you...

https://connect.mayoclinic.org/comment/1338931/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 1 6:50am

@sarahfloranne, Sorry to hear you’ve had this side effect to the Lanreotide - which unfortunately is...

https://connect.mayoclinic.org/comment/876306/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10, 2023

I will "hope" with you that this new treatment works. Is he still taking the Octreotide...

https://connect.mayoclinic.org/comment/887684/

Discussion: Looking for information on CAPTEM treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 30, 2023

@pennypowell Lanreotide is similar to Octreotide and should help with symptoms. Many members of this discussion...

https://connect.mayoclinic.org/comment/799802/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2023

I understand you have had neuroendocrine tumors for many years. Were you receiving any treatment prior...

https://connect.mayoclinic.org/comment/1171846/

Discussion: Newly diagnosed - neuroendocrine tumor in intestines

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2024

I also have 2 carcinoids in my left lung and multiple, small other nodules. My tumor...

https://connect.mayoclinic.org/comment/844958/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18, 2023

Yes; fatty liver showed up on scans/labs following cytoreductive/debulking surgery for GI mets & now on...

https://connect.mayoclinic.org/comment/1377451/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: 2 days ago

Hi @marciamiller I also have DIPNECH and lung NETS (cancer). I’m guessing you saw Dr. Ramirez....

https://connect.mayoclinic.org/comment/1162740/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2024

@markmark007 I take octreotide injections for lung NETS and DIPNECH. My 50+ lung tumors are very...

https://connect.mayoclinic.org/comment/966952/

Discussion: Octreotide Injections - Skipping One or More?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 18, 2023

Well my oncologist told that i could try Octreotide 0,1 mg 3 times a day for...

https://connect.mayoclinic.org/comment/1194269/

Discussion: Still have symptoms after surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 20, 2024

Do you take lanreotide or octreotide injections? If so do I have side effects? Thanks! Marcia

https://connect.mayoclinic.org/comment/1173603/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 14, 2024

It sounds like the Octreotide therapy works for you. Was there any surgery done before the...

https://connect.mayoclinic.org/comment/901727/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2023

I have been taking octreotide injections for 4 years for lung NETs and have not had...

https://connect.mayoclinic.org/comment/1207164/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8 8:36pm

Neuroendocrine Tumors (NETs) Support Group