Neuroendocrine Tumors (NETs): Discussions | Page 2

@drkarasheed, you may wish to join these relevant discussions: - Pancreatic Cancer: Anyone have liver metastasis...

https://connect.mayoclinic.org/comment/1304347/

Discussion: I’m living with Pancreatic Neuroendocrine Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 14, 2025

@shirleyslominski mine started in my gut in 1996 and are now in my liver. I have...

https://connect.mayoclinic.org/comment/1532205/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21 2:50pm

I am Small Intestine primary with Liver metastases… Grade 1; Stage 4. Every person with NET...

https://connect.mayoclinic.org/comment/922667/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1, 2023

@links, do you have inflammation of the liver capsule? Or is it the tumor stretching the...

https://connect.mayoclinic.org/comment/967684/

Discussion: Anyone have stretching of the liver capsule?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 19, 2023

Is the Joe Tippens protocol for neuroendocrine cancer? It looked like it was for pancreatic cancer.....

https://connect.mayoclinic.org/comment/1289433/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25, 2025

I have not had a liver transplant but was diagnosed with NETS this April and I...

https://connect.mayoclinic.org/comment/1330014/

Discussion: Liver transplant and Neuroendocrine Carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2025

I've tried hydroxyzine for months and also benadryl. Only cold helps. Liver specialist says paraneoplastic effect...

https://connect.mayoclinic.org/comment/1383695/

Discussion: Carcinoid syndrome symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 31, 2025

@jasonrex86 I had distal pancreatectomy, gall bladder and spleen along with RFA in 2025. After RFA...

https://connect.mayoclinic.org/comment/1526673/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 14 10:47am

My husband just had surgery for NETS through the Winship Cancer Institute at Emory University Hospital...

https://connect.mayoclinic.org/comment/1531937/

Discussion: DIPNECH dr in GA- Atlanta

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21 9:00am

I have been on Everlimos for 12 weeks. A follow up CT done recently showed slight...

https://connect.mayoclinic.org/comment/1524872/

Discussion: Previous heart surgery & risks of surgery to remove lung net

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11 7:07pm

Multiple liver nodules, 10-14 I believe so NETS surgeon removed a triangle section of liver.

https://connect.mayoclinic.org/comment/1301391/

Discussion: Has anyone had the peritoneal stripping surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2025

Well we were surprised at the transplant option, our assumption was we get the NET to...

https://connect.mayoclinic.org/comment/994290/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2024

Yes, my fatty liver disease has gotten severe in the past year (as shown by my...

https://connect.mayoclinic.org/comment/1199891/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 29, 2024

My uptake went way up after liver ablation. The surgeon explained that this was normal.

https://connect.mayoclinic.org/comment/1511823/

Discussion: Post PRRT & Post SPECT - Quantitative Response

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 22 8:29am

Oh so sorry for the bad stuff following embolization. Not sure if it is helpful but...

https://connect.mayoclinic.org/comment/828461/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19, 2023

yes was found in routine blood work with liver values off further testing revealed tumors in...

https://connect.mayoclinic.org/comment/671990/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 18, 2022

@tomrennie PNET with metastasis to the liver. Found when I had a CT scan for another...

https://connect.mayoclinic.org/comment/1487938/

Discussion: Reccurrenct NETs and side effects of cap/tem

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21 9:52am

We have a number of members in the NET support group who have discussed their experiences...

https://connect.mayoclinic.org/comment/1146709/

Discussion: After initial tests/consults at Mayo: When does NETs treatment start?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2024

Since 2018 I have small bowel NET/carcinoid, met to the liver. Surgery removed the primary tumor...

https://connect.mayoclinic.org/comment/1537401/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 28 3:04pm

@skjones56 Hi and welcome to Mayo Connect. Sorry to hear about the liver metastasis. Are you...

https://connect.mayoclinic.org/comment/1497772/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4 8:18am

Neuroendocrine Tumors (NETs) Support Group