Neuroendocrine Tumors (NETs) Support Group

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Comments (368)

Hi all, hoping spring is good and well for you. I’m circling back to my post...

https://connect.mayoclinic.org/comment/1275884/

Discussion: Cu-64 Dotatate PET results show no malignancy. What’s next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2025

Hi anyone with NETS recurrence? I had laparoscopy surgery to remove the tumor from my small...

https://connect.mayoclinic.org/comment/1255264/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11, 2025

So optimistic about this treatment modality! I have two questions. Has this treatment been successful on...

https://connect.mayoclinic.org/comment/1192687/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: Dec 18, 2024

My NET’s were discovered by my gastroenterologist during reviewing a CT scan after I had a...

https://connect.mayoclinic.org/comment/1177879/

Discussion: How many doctors did you see to get to your NETS diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22, 2024

I guess I should introduce myself before I answer people. I am a NET patient at...

https://connect.mayoclinic.org/comment/176729/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2019

Since my diagnosis in 2002 at Mayo Clinic, I have had surgery to remove appendix, gallbladder,...

https://connect.mayoclinic.org/comment/137542/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2017

@kevinmonroemi thank you for sharing. I have functional Gastrinoma PNET at head of pancreas removed in...

https://connect.mayoclinic.org/comment/1542508/

Discussion: Started PRRT treatment: Anyone experience tumor markers increasing?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4 8:51am

I was 39 when the first tumor was discovered in between my small and large intestine....

https://connect.mayoclinic.org/comment/1380376/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 27, 2025

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