Neuroendocrine Tumors (NETs) Support Group

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Comments (435)

Zebra, various cancers are not the thing you want to be collecting. I bet you'd rather...

https://connect.mayoclinic.org/comment/957369/

Discussion: Anyone have a small pancreatic IPMN cyst that turned out to be cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2023

Hello @mamadneuroendocrine and welcome to the NETs support group on Mayo Connect. I'm glad that you...

https://connect.mayoclinic.org/comment/953559/

Discussion: Metastatic NeuroEndocrine Grade 3 - ki 80% -

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2023

My recent 6 month CT scan showed a 7 mm pancreatic cyst that looks like a...

https://connect.mayoclinic.org/comment/953372/

Discussion: Anyone have a small pancreatic IPMN cyst that turned out to be cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2023

Hello @lully2505 and welcome to the NET support group on Mayo Connect. I see that you...

https://connect.mayoclinic.org/comment/938737/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 29, 2023

That was 8/22 when I got diagnosed with a pancreatic NET that spread to my liver....

https://connect.mayoclinic.org/comment/935792/

Discussion: Follow up surgery for PNET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2023

Kim1965, I was very interesting to read about your wife’s case. Sounds very similar to mine...

https://connect.mayoclinic.org/comment/932191/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2023

Hi there. I hope you are keeping well. I also have a NET in the tail...

https://connect.mayoclinic.org/comment/923623/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 3, 2023

I have a 6.6mm net on the tail of my pancreas. They have been watching it...

https://connect.mayoclinic.org/comment/922345/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1, 2023

After a lot of tests, scans and different doctors over the course of the last year,...

https://connect.mayoclinic.org/comment/912620/

Discussion: Anyone with an insulinoma have only therapies instead of surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 14, 2023

My best advice is to have the surgery if your doctor recommends it. Don't be afraid...

https://connect.mayoclinic.org/comment/902822/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 26, 2023

Yes all went away. However that is bad news not good. Once you have nets by...

https://connect.mayoclinic.org/comment/897588/

Discussion: Anyone have a stomach NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2023

Hello @carm1011 and welcome to the NETs support group on Mayo Connect. I am glad that...

https://connect.mayoclinic.org/comment/890939/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 6, 2023

I hope they are able to diagnose the issue and provide a solution. I had a...

https://connect.mayoclinic.org/comment/890933/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 6, 2023

I was at Mass general last summer and they seem to employ the ‘let’s watch it...

https://connect.mayoclinic.org/comment/884361/

Discussion: Feeling discouraged and too many specialists

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2023

I am feeling pretty well thank you. Came back from a 3 mile hike with my...

https://connect.mayoclinic.org/comment/881898/

Discussion: My Sister and Best Friend

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20, 2023

Hi vtn So I didn’t have the gallium first. So when they did the first recheck...

https://connect.mayoclinic.org/comment/858909/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 12, 2023

Hi vtn I am sorry that this has happened to you. I am glad you saw...

https://connect.mayoclinic.org/comment/858821/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 12, 2023

I’m glad he is doing well. Big hugs to you both. It’s very scary. I’m having...

https://connect.mayoclinic.org/comment/855752/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 7, 2023

@fabiant No she had a open incision, about 12" from center of stomach up. So a...

https://connect.mayoclinic.org/comment/848829/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2023

Hello @deb1955 and welcome to the NETs discussion on Mayo Clinic Connect. I am glad that...

https://connect.mayoclinic.org/comment/846257/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2023

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