Neuroendocrine Tumors (NETs) Support Group

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Comments (435)

I just checked and UCSD has a NETs program with a full multidisciplinary team of specialists....

https://connect.mayoclinic.org/comment/1204945/

Discussion: Hello. I am new here. My husband was recently diagnosed with NETs.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2025

3 χρόνια έχω κάνει εγχείριση ΝΕΤ στο στομάχι. Είναι ανενεργός. Εχει παρουσιαστεί τώρα και στο πάγκρεας,αλλά...

https://connect.mayoclinic.org/comment/1178280/

Discussion: Anyone have a stomach NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22, 2024

Thanks for your comment. I have since learned that non functioning (no symptom) tumors do not...

https://connect.mayoclinic.org/comment/1166857/

Discussion: Dotatate lights only in liver, but report says metastatic to liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 2, 2024

@cewald62, my wife has NET in the liver still after finding the primary tumor on the...

https://connect.mayoclinic.org/comment/1146827/

Discussion: After initial tests/consults at Mayo: When does NETs treatment start?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2024

I’m so sorry you’re going through this. I know it’s scary and there’s so much to...

https://connect.mayoclinic.org/comment/1112706/

Discussion: GI Net stage 4 advanced: Is it incurable?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2024

I have a Neuro Endocrine Tumor of the Pancreas. 9-6-2019 second CT Scan SHOWED NEGATIVE GROWTH...

https://connect.mayoclinic.org/comment/275675/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 8, 2019

I last saw Dr. Kasi my net specialist in Feb. just before he left Mayo and...

https://connect.mayoclinic.org/comment/176697/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2019

Hello @marilyn2525 I so appreciate the information you provided. I have had three surgeries for NETs...

https://connect.mayoclinic.org/comment/134694/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2019

Hello. My thoughts are with you. My husband has had 3 of 4 lutathera treatments (PRRT)...

https://connect.mayoclinic.org/comment/1074467/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2024

Hello @cangre82 and welcome to Mayo Connect. I can understand your concern and your need for...

https://connect.mayoclinic.org/comment/1073905/

Discussion: newly diagnosed pNET on tail of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24, 2024

@gig666 We can't say what treatment to do, but what we all can say on this...

https://connect.mayoclinic.org/comment/1054639/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2024

I went to MAYO in Rochester last week for a second opinion. The NET specialist and...

https://connect.mayoclinic.org/comment/1054396/

Discussion: Large Appendiceal NET, well-differentiated

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2024

I also had similar results on CAP/TEM with my pancreatic NET with liver metastasis. Every thing...

https://connect.mayoclinic.org/comment/1038336/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2024

Hello jolo24. Thanks for reaching back. Im still pretty overwhelmed with so many new terms and...

https://connect.mayoclinic.org/comment/1036215/

Discussion: Newly Diagnosed Pancreatic NET awaiting Distal Pancrectomy

Support Group: Pancreatic Cancer

Posted: Mar 18, 2024

Patrick, were your tumors NET’s? Who is your oncologist at Barnes? I was diagnosed with a...

https://connect.mayoclinic.org/comment/1031029/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10, 2024

Thank you for your response and guidance. My Doctor is in that list. He is an...

https://connect.mayoclinic.org/comment/1010146/

Discussion: GI NET attached to pancreas supposedly non-producing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5, 2024

Are you all at Mayo Clinic in Jax or Rochester if you don’t mind me asking...

https://connect.mayoclinic.org/comment/998503/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2024

Hello @djchambers and welcome to the NETs support group on Mayo Connect. As you are probably...

https://connect.mayoclinic.org/comment/984765/

Discussion: Should I see a NET specialist?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2023

Welcome, @clintwlively. I've added your discussion to the Neuroendocrine Tumors (NETs) Support Group as well -...

https://connect.mayoclinic.org/comment/981815/

Discussion: Stage four high-grade neuroendocrine carcinoma

Support Group: Lung Cancer

Posted: Dec 16, 2023

Dr. Sonbol and his team saved my life. So, I am biased. By the time that...

https://connect.mayoclinic.org/comment/981090/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2023

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