Neuroendocrine Tumors (NETs): Discussions | Page 17

I was diagnosed with NETS WITH METASTASIS to my liver. I had a transplant. It was...

https://connect.mayoclinic.org/comment/949270/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 17, 2023

It was a ' combined' pancreatectomy ( with spleen and gallbladder removal), liver debulking AND hysterectomy...

https://connect.mayoclinic.org/comment/847119/

Discussion: Who has had Distal Pancreatectomy and regretted it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2023

Hello @dbamos1945 I just noticed that @caitrina's post is in the liver debulking group, however, she...

https://connect.mayoclinic.org/comment/780507/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 3, 2022

Thanks for your reply. Have your doctors ever run any tests to determine if pancreas or...

https://connect.mayoclinic.org/comment/1207772/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2025

Have worsening symptoms for close to 20 years but much progression since Sep 21 with multiple...

https://connect.mayoclinic.org/comment/748820/

Discussion: Liver mets mistaken as hemangioma or harmatoma on MRI

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2022

@kgrear mine are tiny too. another recommended treatment for multiple liver lesions they may try is...

https://connect.mayoclinic.org/comment/1435702/

Discussion: S4, G2 NETS in mesentery. Declined Exploratory Surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2025

MRI about every 4 months, eating is going too well. Thus the increased severity of Fatty...

https://connect.mayoclinic.org/comment/1203376/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 3, 2025

Hello, my husband has stage 4 Neuroendocrine Tumor Cancer. He had a large tumor on his...

https://connect.mayoclinic.org/comment/1408542/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 4, 2025

In my experience every time I read the latest scans summary, it's a day of new...

https://connect.mayoclinic.org/comment/1219632/

Discussion: Liver masses found on CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23, 2025

I am right with you with your feelings. I had stage 4 Neuroendocrine cancer of small...

https://connect.mayoclinic.org/comment/163994/

Discussion: The Roller Coaster Ride of Cancer

Support Group: Cancer

Posted: Dec 4, 2019

My embolization was January 12, 2023 It took me about a month to truly recover After...

https://connect.mayoclinic.org/comment/829069/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2023

@tgsenn70 Sure. But first, is your husband seeing a net specialist? Is the iv chemotherapy you...

https://connect.mayoclinic.org/comment/1404439/

Discussion: New pNET so scared

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 29, 2025

She has a well-differentiated grade 3 PNET that metastases to the liver. There were quite a...

https://connect.mayoclinic.org/comment/934866/

Discussion: Carcinoid syndrome; NET not found

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2023

Hi, Mark! I started PRRT with Lutathera in December 2022. I had three treatments. Scans in...

https://connect.mayoclinic.org/comment/881873/

Discussion: Post Lu177 PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20, 2023

I have not had the calcium stimulation test yet. It is coming up soon. However, I...

https://connect.mayoclinic.org/comment/839764/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 8, 2023

I had surgery on Feb.1. Distal pancreatectomy, removal of part of the stomach, gallbladder and spleen.,...

https://connect.mayoclinic.org/comment/822921/

Discussion: NET lung with Liver Metastasis (stage 4)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 8, 2023

Start of a new journey: Pathology report of liver biopsy indicating metastatic high grade neuroendocrine cell...

https://connect.mayoclinic.org/comment/810954/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2023

Husband was diagnosed in Nov. of last year with low grade neuroendocrine carcinoma which started at...

https://connect.mayoclinic.org/comment/941333/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 3, 2023

That report my say metastatic to liver because I've read that neuroendocrine doesn't typically originate in...

https://connect.mayoclinic.org/comment/1158066/

Discussion: Dotatate lights only in liver, but report says metastatic to liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 16, 2024

@laree That sounds like a really interesting and promising 2 punch approach, especially considering 25% ki67....

https://connect.mayoclinic.org/comment/1342304/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 6, 2025

Neuroendocrine Tumors (NETs) Support Group