Neuroendocrine Tumors (NETs) Support Group

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Comments (438)

The best way is to listen to your oncologist and if you go for surgery- find...

https://connect.mayoclinic.org/comment/1003402/

Discussion: NET in illeum, surgery or proper nutrition?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2024

Hi @pamsbass, I had a Pyloric preserving pancreaticoduodenectomy (modified Whipple) liver resection and liver ablation in...

https://connect.mayoclinic.org/comment/1001236/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2024

Thank god for our multi discipline team of NET specialists, surgeons, chemo specialists, etc. they have...

https://connect.mayoclinic.org/comment/985488/

Discussion: Should I see a NET specialist?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 23, 2023

I think it really depends on how much of the pancreas needs to be removed. You...

https://connect.mayoclinic.org/comment/960273/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2023

I had Whipple and liver ablation, liver resection in 2019 primary NET was on the head...

https://connect.mayoclinic.org/comment/958846/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 4, 2023

I have stage 4 NET pancreatitis to liver cancer. Also had trouble with sugar levels dropping...

https://connect.mayoclinic.org/comment/934290/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 22, 2023

It great your doctor reviewed the options you have, but the doctor wants you to choose?...

https://connect.mayoclinic.org/comment/899570/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21, 2023

I had 100 tumors in my stomach. Many were polyps, however 5 were biopsied and all...

https://connect.mayoclinic.org/comment/896529/

Discussion: Anyone have a stomach NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2023

I agree with other comments you need to respectfully push your care team for possible treatments...

https://connect.mayoclinic.org/comment/889727/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 4, 2023

@ Turkey - huge. 20×16×12 cm. It had grown over part of my stomach, vascularized. So...

https://connect.mayoclinic.org/comment/881954/

Discussion: My Sister and Best Friend

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20, 2023

Hi all, I’m new to this forum and this condition. Started with GI pain and inconsistent...

https://connect.mayoclinic.org/comment/876745/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 11, 2023

I don’t know what to say. Mine is an Insulinoma, Pancreas and spread to my Liver....

https://connect.mayoclinic.org/comment/866991/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2023

The problem with blanket statements like your doctor told is that we all have different types...

https://connect.mayoclinic.org/comment/861136/

Discussion: Dying from car accident can cause death more so this cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

We aren't doctors, but generally NET is slow growing in most cases, and the key is...

https://connect.mayoclinic.org/comment/859028/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 12, 2023

We are here to support you, pray for you and send love. It is very scary....

https://connect.mayoclinic.org/comment/855753/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 7, 2023

Thanks for sharing those great results, @pavlina60. I'm sure it will be encouraging to @michellesimpson10 and...

https://connect.mayoclinic.org/comment/846892/

Discussion: Who has had Distal Pancreatectomy and regretted it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2023

I went through that surgery ( and hysterectomy at the same time due to endometrial cancer)....

https://connect.mayoclinic.org/comment/846750/

Discussion: Who has had Distal Pancreatectomy and regretted it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2023

Good morning all, I have NET, pancreas to liver. I don’t have diabetes but the numerous...

https://connect.mayoclinic.org/comment/836139/

Discussion: Anyone dealing with Carcinoid NETs with Diabetes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2023

I was on Flofox chemotherapy for six months and my tumors [liver and pancreas] and a...

https://connect.mayoclinic.org/comment/824415/

Discussion: NET lung with Liver Metastasis (stage 4)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11, 2023

Hello @rushlakekathy and welcome to the NET discussion on Mayo Clinic Connect. I am glad that...

https://connect.mayoclinic.org/comment/814504/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2023

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