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Public Support Group 413 total results
Comments (362)
Hi @kissoon22, welcome. This must all be so shocking and scary as you learn about your...
https://connect.mayoclinic.org/comment/790563/
In 2021 I went to the emergency room with severe stomach pain. Thank-God the emergency room...
https://connect.mayoclinic.org/comment/1427968/
@momo5512: Take a deep breath for you need to first hear that Neuroendocrine Carcinoid Tumors are...
https://connect.mayoclinic.org/comment/1547388/
@splendtous: I hope you are getting helpful information to form your decision on NET cancer tumor...
https://connect.mayoclinic.org/comment/1365392/
Absolutely open to sharing. I was diagnosed originally in 2020 after a 30 day bout with...
https://connect.mayoclinic.org/comment/1292381/
Digestion issues are different for everyone. I had about a yard of small intestine removed and...
https://connect.mayoclinic.org/comment/879118/
@nana120: I am sorry you are experiencing new tumors. Are you seeing a NET Oncologist with...
https://connect.mayoclinic.org/comment/1360091/
Hello @vickihorseman and welcome to Mayo Connect. From your post, it looks like you have had...
https://connect.mayoclinic.org/comment/1171737/
@bluebell, So sorry to hear you’re having struggles with your diet post surgery, but I certainly...
https://connect.mayoclinic.org/comment/943818/
I was diagnosed in 1993 by a doctor who performed a colonoscopy after heavy rectal bleeding....
https://connect.mayoclinic.org/comment/771371/
Hi there, my hubs had had NETS (neoendrocrine tumors) since 2019. I saw the above post...
https://connect.mayoclinic.org/comment/1231187/
Gig666, I am somewhat appalled that your docs didn't give you more options rather than just...
https://connect.mayoclinic.org/comment/1054944/
3 yrs ago a NET removed from small intestine during endoscopy - since then all labs...
https://connect.mayoclinic.org/comment/1012292/
Hi @allan2022, welcome. I moved your message to the Neuroendocrine Tumors (NETs) Support Group here https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/...
https://connect.mayoclinic.org/comment/810465/
@mmar2025: My PRRT was because the latest MRI showed 40% tumor progression from the 2021 diagnosis...
https://connect.mayoclinic.org/comment/1502103/
Have your doctors discussed having Lutathera treatment? My husband has Stage 4 NET that started in...
https://connect.mayoclinic.org/comment/1505529/
@splendrous: I was in this situation last June (2024) - small intestine/stomach primary with liver mets…...
https://connect.mayoclinic.org/comment/1364348/
mgb20, Reading your post was like reading my story - 5 years ago (3/18) I, too,...
https://connect.mayoclinic.org/comment/830736/
@jutebox42 & @hopeful33250 You asked about my Neuroendocrine Cancer diagnosis - dx October 2021 biopsy in...
https://connect.mayoclinic.org/comment/1251442/
I wish I had an answer for you, but I doubt that even your doctor can...
https://connect.mayoclinic.org/comment/867084/
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