Neuroendocrine Tumors (NETs) Support Group | Page 12

@dadcue I'm not a doctor, so my opinion is just that an unqualified/unskilled opinion. For me...

https://connect.mayoclinic.org/comment/1543997/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6 10:34am

@rocket102, the diagnostic process is anxiety inducing even for the most pragmatic. I can understand why...

https://connect.mayoclinic.org/comment/895793/

Discussion: Results from MRI confusing: Is it NETs or not?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 14, 2023

Hi @kissoon22, welcome. This must all be so shocking and scary as you learn about your...

https://connect.mayoclinic.org/comment/790563/

Discussion: Diagnosed with carcinoid tumor in the colon: Is this cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 30, 2022

In 2021 I went to the emergency room with severe stomach pain. Thank-God the emergency room...

https://connect.mayoclinic.org/comment/1427968/

Discussion: NETs with Liver metastasis: starting lanreotide injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 31, 2025

@splendtous: I hope you are getting helpful information to form your decision on NET cancer tumor...

https://connect.mayoclinic.org/comment/1365392/

Discussion: Interested in your experience with treatments of PRRT vs surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 7, 2025

Absolutely open to sharing. I was diagnosed originally in 2020 after a 30 day bout with...

https://connect.mayoclinic.org/comment/1292381/

Discussion: PanNET and CgA results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2025

@nana120: I am sorry you are experiencing new tumors. Are you seeing a NET Oncologist with...

https://connect.mayoclinic.org/comment/1360091/

Discussion: Anyone on cabozantinib after Y90

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 30, 2025

Hello @vickihorseman and welcome to Mayo Connect. From your post, it looks like you have had...

https://connect.mayoclinic.org/comment/1171737/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2024

Digestion issues are different for everyone. I had about a yard of small intestine removed and...

https://connect.mayoclinic.org/comment/879118/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 15, 2023

@bluebell, So sorry to hear you’re having struggles with your diet post surgery, but I certainly...

https://connect.mayoclinic.org/comment/943818/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2023

I was diagnosed in 1993 by a doctor who performed a colonoscopy after heavy rectal bleeding....

https://connect.mayoclinic.org/comment/771371/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9, 2022

@hopeful33250 Results from my Dotatate Scan are back. It doesn't seem so good but it probably...

https://connect.mayoclinic.org/comment/1539723/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31 2:02pm

Hi there, my hubs had had NETS (neoendrocrine tumors) since 2019. I saw the above post...

https://connect.mayoclinic.org/comment/1231187/

Discussion: Lanreotide Question: Why start before the next scan?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2025

@rkklinger: 5/6/26. The description of your NET journey is unique, at least to me! I am...

https://connect.mayoclinic.org/comment/1568594/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 7 12:01am

Gig666, I am somewhat appalled that your docs didn't give you more options rather than just...

https://connect.mayoclinic.org/comment/1054944/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2024

3 yrs ago a NET removed from small intestine during endoscopy - since then all labs...

https://connect.mayoclinic.org/comment/1012292/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9, 2024

Hi @allan2022, welcome. I moved your message to the Neuroendocrine Tumors (NETs) Support Group here https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/...

https://connect.mayoclinic.org/comment/810465/

Discussion: Searching for info re NETs and heart issues

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2023

@mmar2025: My PRRT was because the latest MRI showed 40% tumor progression from the 2021 diagnosis...

https://connect.mayoclinic.org/comment/1502103/

Discussion: Neuroendocrine Pancreatic Tumors with KIT Missense Variant Exon 10 GOF

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9 8:46pm

@momo5512: Take a deep breath for you need to first hear that Neuroendocrine Carcinoid Tumors are...

https://connect.mayoclinic.org/comment/1547388/

Discussion: New to NET: Not sure what to expect from here

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10 2:49pm

Have your doctors discussed having Lutathera treatment? My husband has Stage 4 NET that started in...

https://connect.mayoclinic.org/comment/1505529/

Discussion: What helps with muscle aches and weakness after Lanreotide injections?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14 10:49am