Neuroendocrine Tumors (NETs): Discussions | Page 1

My symptoms were bloating, severe abdominal pain resulting in slight temperature spike and vomiting. This happen...

https://connect.mayoclinic.org/comment/829669/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2023

Hi, My name is Penny. My wife, Cindy, had surgery on December 6 in which they...

https://connect.mayoclinic.org/comment/797408/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2023

It’s never to late you come to the right place , I’m a Neuroendocrine survivor I...

https://connect.mayoclinic.org/comment/768090/

Discussion: Newly diagnosed - neuroendocrine tumor in intestines

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2022

I am so relieved to hear those two concerns have been resolved in your favor. Thank...

https://connect.mayoclinic.org/comment/163993/

Discussion: The Roller Coaster Ride of Cancer

Support Group: Cancer

Posted: Dec 4, 2019

I have been on sandostatin since sept 2014. After extensive surgery to remove carcinoids on large...

https://connect.mayoclinic.org/comment/137527/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2017

Hi Carrie! I am do sorry to hear your news and I completely empathize with your...

https://connect.mayoclinic.org/comment/1073202/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 23, 2024

Hi, I was diagnosed 8-7-23 with NET of the small intestines. I am a Grade 2...

https://connect.mayoclinic.org/comment/1015199/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2024

I was diagnosed a year ago with a NET on the valve that connects the large...

https://connect.mayoclinic.org/comment/986403/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 25, 2023

I was diagnosed with Neuroendocrine tumors in my liver and small intestines back in December 2022....

https://connect.mayoclinic.org/comment/870969/

Discussion: Neuroendocrine tumor and carcinoid tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 2, 2023

I have an unknown primary They think in my small intestines but it isn’t showing on...

https://connect.mayoclinic.org/comment/862966/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2023

I’m being treated at Mayo Jax. Was diagnosed with NETs (Carcinoid Syndrome)December 2022, started in the...

https://connect.mayoclinic.org/comment/831689/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Hi - I hope your meeting with the specialists was good. Would you mind telling me...

https://connect.mayoclinic.org/comment/820013/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2023

Hi, I am living in Adelaide. South Australia. I went through chemo with non Hodgkins lymphoma...

https://connect.mayoclinic.org/comment/819077/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2023

I am so sorry I didn't respond earlier as I have been away for the last...

https://connect.mayoclinic.org/comment/770234/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2022

I had it ordered after multiple ER visits, oily diarrhea, yellow diarrhea, green diarrhea and ultimately...

https://connect.mayoclinic.org/comment/756770/

Discussion: Is high CA. 19.9 a good indicator of malignancy?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 3, 2022

All I can offer is hope that the blockage problem will sort itself out soon. After...

https://connect.mayoclinic.org/comment/755129/

Discussion: Intestinal Blockage with NETs: Anyone else?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 29, 2022

I have not eaten in 45 days. They feed me intravenously and have had 5 NG...

https://connect.mayoclinic.org/comment/748721/

Discussion: Intestinal Blockage with NETs: Anyone else?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2022

Hello @gene0552 I'd like to join @amandajro in welcoming you to Mayo Connect. As I have...

https://connect.mayoclinic.org/comment/748709/

Discussion: Intestinal Blockage with NETs: Anyone else?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2022

I guess I should introduce myself before I answer people. I am a NET patient at...

https://connect.mayoclinic.org/comment/176729/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2019

Since my diagnosis in 2002 at Mayo Clinic, I have had surgery to remove appendix, gallbladder,...

https://connect.mayoclinic.org/comment/137542/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2017

Neuroendocrine Tumors (NETs) Support Group