Neuroendocrine Tumors (NETs) Support Group

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Comments (271)

I had surgery for carcinoid tumors in my small bowel and abdominal cavity 12 years ago,...

https://connect.mayoclinic.org/comment/752939/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2022

Hi I was diagnosed with NET in my small intestines just like you in 2011 I...

https://connect.mayoclinic.org/comment/752699/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 22, 2022

I have Grade 1 stage 4 stage NET. The primary tumor was resected which was in...

https://connect.mayoclinic.org/comment/1216428/

Discussion: I am one year out with my diagnosis just finished 4th round of PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19 10:34am

I guess I should introduce myself before I answer people. I am a NET patient at...

https://connect.mayoclinic.org/comment/134540/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2019

My appt is July 11 with Dr. Stucky. I saw my general surgeon this morning and...

https://connect.mayoclinic.org/comment/176715/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 28, 2019

So relieved to find people with this frustrating disease process. I was beginning to think I...

https://connect.mayoclinic.org/comment/135496/

Discussion: The role of Tumor Marker Labs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 2, 2017

I also had small in intestine had surgery soon after finding out they took about a...

https://connect.mayoclinic.org/comment/1208440/

Discussion: Can anyone share information about NET in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10 1:26pm

My husband was diagnosed with GTSBnet grade1-grade2 well-differented tumor 3 years ago. First you have to...

https://connect.mayoclinic.org/comment/1204614/

Discussion: Can anyone share information about NET in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5 1:05pm

I had neuroendocrine tumors in my small intestines. I had surgery in 2017, the surgeon removed...

https://connect.mayoclinic.org/comment/1110182/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2024

My husband had to have an open surgery because his 3mm tumor was deep in his...

https://connect.mayoclinic.org/comment/1003834/

Discussion: NET in illeum, surgery or proper nutrition?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2024

Your situation is one we all face and I am constantly retooling my diet based on...

https://connect.mayoclinic.org/comment/1003829/

Discussion: NET in illeum, surgery or proper nutrition?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2024

My spouse was diagnosed with GEP-NET and "heavy load" of tumors on the the small intestines...

https://connect.mayoclinic.org/comment/959684/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 5, 2023

May I ask how they found the carcinoid NET in your small intestines?

https://connect.mayoclinic.org/comment/884124/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2023

Hi Jlu, first off, wow 10x10cm is a very big tumor. And you have lots going...

https://connect.mayoclinic.org/comment/857723/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2023

I was diagnosed with net cancer December 2020. Originated in small intestines and spread to liver....

https://connect.mayoclinic.org/comment/856717/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2023

Yes I was diagnosed with net in May of last year in my small intestines

https://connect.mayoclinic.org/comment/835232/

Discussion: Anyone have a stomach NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2023

Patrick, I would like to know more about your regimen and diet. I was diagnosed this...

https://connect.mayoclinic.org/comment/776233/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22, 2022

Hello 👋🏻 I had a regular PET scan March that showed just physical activity in all...

https://connect.mayoclinic.org/comment/756669/

Discussion: Is high CA. 19.9 a good indicator of malignancy?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 3, 2022

I received my Mayo Clinic e- consult. They agreed with the biopsy finding I had from...

https://connect.mayoclinic.org/comment/1161712/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2024

My husband’s journey started In 2015 with stomach pains nothing diagnosed. Then in 2019 he was...

https://connect.mayoclinic.org/comment/1121892/

Discussion: Pancreastatin level at 1500

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 11, 2024

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