Neuroendocrine Tumors (NETs): Discussions

@phyllisden Glad to know the combination of PRRT with Octreotide have produced stable result for you....

https://connect.mayoclinic.org/comment/1060680/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2024

I found this info on the internet. Might be useful to understand these drugs. Octreotide is...

https://connect.mayoclinic.org/comment/1250720/

Discussion: New and concerned about my wife.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5 6:31am

They are the monthly octreotide injections

https://connect.mayoclinic.org/comment/748531/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2022

Treatment with prrt or octreotide

https://connect.mayoclinic.org/comment/90130/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2016

Great news What is the difference between octreotide and lanreotide I currently switched doctors and she...

https://connect.mayoclinic.org/comment/727432/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2022

I just pulled this from Mayo's website: "Octreotide injection is used to treat severe diarrhea and...

https://connect.mayoclinic.org/comment/1345945/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 11 1:50pm

That is great news! I agree, Octreotide or Lan. shots really help with hormonal issues.

https://connect.mayoclinic.org/comment/1360742/

Discussion: (Spouse)Supports Stage 2

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 31 12:19pm

I’ve been taking octreotide injections for over 3 years for lung NETs. Cause fatigue especially the...

https://connect.mayoclinic.org/comment/1098642/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 3, 2024

You mention Octreotide and ability to avoid so far. This has been recommended for me but...

https://connect.mayoclinic.org/comment/817247/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2023

I appreciate your sharing your diagnosis and treatment. I have one doctor recommending octreotide and one...

https://connect.mayoclinic.org/comment/1161763/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2024

Hair thinning, fatigue, low blood pressure and heart rate, blood sugar spikes. I also started breast...

https://connect.mayoclinic.org/comment/1172022/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2024

Have started the octreotide and so far so good.

https://connect.mayoclinic.org/comment/851962/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 30, 2023

I’m not familiar with UK meds but wondering if Octreotide injections would be an available alternative?

https://connect.mayoclinic.org/comment/1333593/

Discussion: Neuroendocrine Lanreotide (Advanz Pharma) Problems

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23 2:51pm

@gprior Have you tried octreotide injections for respiratory symptoms? It has been life changing for me....

https://connect.mayoclinic.org/comment/1142710/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2024

Interested that octreotide was not prescribed for you. Seems like it is the norm. Would be...

https://connect.mayoclinic.org/comment/1171807/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2024

I did PRRT with octreotide Finished treatment in November of 2024 I am still receiving Octreotide...

https://connect.mayoclinic.org/comment/1329589/

Discussion: PRRT and Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18 6:21am

I have been on Octreotide for about 7 months, I haven’t missed an injection during that...

https://connect.mayoclinic.org/comment/967687/

Discussion: Octreotide Injections - Skipping One or More?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 19, 2023

Yes he has been on the OCTREOTIDE monthly injections for 12 months now

https://connect.mayoclinic.org/comment/887919/

Discussion: Looking for information on CAPTEM treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 30, 2023

Hi I did 4 PRRT treatments with octreotide Did a PET scan and a MRI It...

https://connect.mayoclinic.org/comment/1303390/

Discussion: Update: Lutethera treatment is over

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13 1:48pm

,@sandy23, is your husband on clinical trial to be able to go on Lutathera oxodotreotide (...

https://connect.mayoclinic.org/comment/939864/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2023

Neuroendocrine Tumors (NETs) Support Group