Neuroendocrine Tumors (NETs) Support Group

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Comments (2,332)

@aprils1957 What kind of liver surgery will you be having?

https://connect.mayoclinic.org/comment/1524225/

Discussion: Previous heart surgery & risks of surgery to remove lung net

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10 7:18pm

I had great success with it! Worked for me. A cluster of tumors in liver.

https://connect.mayoclinic.org/comment/1540112/

Discussion: Has anyone had Y90 treatment for NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: 5 days ago

Call Atlanta Liver and Pancreas surgical specialists and ask to see Dr Sur.

https://connect.mayoclinic.org/comment/1531865/

Discussion: DIPNECH dr in GA- Atlanta

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21 7:24am

Where is he being treated in Georgia? Great physicians in Atlanta at Atlanta Liver and Pancreas.

https://connect.mayoclinic.org/comment/1528138/

Discussion: Liver NETs: Anyone has extreme swelling in feet and ankles?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16 9:50am

I did not have heart problems but had a 8 cm mass removed with the entire...

https://connect.mayoclinic.org/comment/1523947/

Discussion: Previous heart surgery & risks of surgery to remove lung net

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10 11:42am

Your sister is very lucky to have you The journey is very long and decisions are...

https://connect.mayoclinic.org/comment/1539059/

Discussion: Does anyone have neuroendocrine small cell carcinoma of the liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30 6:28pm

There are lesions on my liver and pancreas, so they biopsied the liver lesion, and that...

https://connect.mayoclinic.org/comment/1523148/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 9 10:07am

I am also getting the same shot every 28 days. My tumor was in my pancreas...

https://connect.mayoclinic.org/comment/1538461/

Discussion: i am taking the shot "L"

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30 6:44am

Yes. My husband had it in 2010. At the time his liver had a 50% tumor...

https://connect.mayoclinic.org/comment/1540339/

Discussion: Has anyone had Y90 treatment for NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: 5 days ago

Has anyone had experience with PRRT? Most of my tumors are in my liver and I...

https://connect.mayoclinic.org/comment/1525397/

Discussion: Previous heart surgery & risks of surgery to remove lung net

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 12 1:21pm

@tgsenn70 I am new here; I hope this reply works. We went with Y90 procedure because...

https://connect.mayoclinic.org/comment/1529993/

Discussion: Liver NETs: Anyone has extreme swelling in feet and ankles?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18 2:00pm

I'm so sorry your sister has to go through this. My husband was diagnosed with stage...

https://connect.mayoclinic.org/comment/1538756/

Discussion: Does anyone have neuroendocrine small cell carcinoma of the liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30 11:46am

Can the CgA be over 94 and not be a problem. I am at 97 and...

https://connect.mayoclinic.org/comment/1542756/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: 2 days ago

@jayace2430 hi I had surgery in 2009 I had to have part of my liver removed...

https://connect.mayoclinic.org/comment/1529164/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17 1:55pm

The fact that things are stable is excellent! Frankly since there is no evidence of disease...

https://connect.mayoclinic.org/comment/1498538/

Discussion: Stable metastatic NET – should I be pushing harder for PRRT?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5 8:33am

I have metastatic liver cancer I have been told MRI is the best scan for the...

https://connect.mayoclinic.org/comment/1207344/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2025

@aprils1957 I currently have a 4cm pancreatic NET that has spread primarily to my liver and...

https://connect.mayoclinic.org/comment/1524643/

Discussion: Previous heart surgery & risks of surgery to remove lung net

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11 11:47am

Stay active and healthy as you can- makes a difference! Have had stage 4 NETs since...

https://connect.mayoclinic.org/comment/1490449/

Discussion: What does the future look like for a stage 4 NET patient?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25 3:00pm

Hi @solaviera. Welcome to Mayo Connect. Sometimes fatty liver just happens. I pulled this from Mayo's...

https://connect.mayoclinic.org/comment/1376785/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2025

Hello @amygirl, The question about fatty liver and NETs is something that your doctor could best...

https://connect.mayoclinic.org/comment/1197875/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

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