Video Q&A about Marfan Syndrome: Challenges in Diagnosing and Treating

Thu, Oct 22, 2015
12:00pm to 1:00pm ET

Description

Marfan and Thoracic Aortic Aneurysm Clinic directors Juan M. Bowen, M.D., internist and consultant in cardiovascular diseases, and Alberto Pochettino, M.D., cardiovascular surgeon, discuss Marfan syndrome symptoms, diagnosis, and treatment options, including optimal timing for thoracic aorta repair.  A live question and answer session followed the presentation.

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Location

Online

Where is the back pain?

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Does atherosclerosis present a heightened risk for Marfan patients?

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Can it be passed from grandparents if the parents don't have it?

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What are the most important precautions and information to include in a school health care plan for a child with Marfan?

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Can you speak further about the reduced life span for marfan patients who have had dissections and had most of their aorta repaired?

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During surgery for AVR/MVR replacement/repair, and the marfan wasn't diagnosised earlier, and the aorta ruptured during surgery(and yes, she survived)...what type of doctor will be best for her now, what can she expect, and there is a spinal problem dected, but not addressed yet...best institution/doctor to follow her? She has not officially diagnosised with Marfan.

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Is it possible for a Marfans patient to NEVER haave to have thoracic aorta repair? My son's aorta measures out at approx. 45 mm, but has not grown since he began a combination of attenolol and Losartan.

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Also from previous post...once dissected and repaired, life expectancy and ADL?

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The webinar has concluded. In the following week we will work on answering your questions that were not addressed during the webinar.

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Should a marfan syndrome and vascular Ehlers-Danlos Syndrome and has PVL and is highly fuctional CP. Be a good candidate for aorta repair?

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