Connect
Liver, Kidney, Pancreas Transplant: Second Chance Support Group, Mayo Florida
Tue, Feb 21, 2023
11:00am to 12:00pm ET
Description
Second Chance is a weekly in-person support group for Mayo Clinic patients and their caregivers pre- and post-transplant of the liver, kidney, and pancreas. Every Tuesday, the group provides support, education, and perspective or insight into the transplant process, especially recovery and life after transplant. Through facilitated discussion, members help members with their specific questions, needs, and concerns.
This support group is hosted on campus at Mayo Clinic Florida.
To connect with fellow transplant patients and caregivers online any time from any where, visit the online Transplants Group on Connect.
Location
Mayo Clinic
Cannaday Building, Room 1050
4500 San Pablo Rd.
Jacksonville, FL 32224
Contact
Michael Womack, LCSW
904-956-3208
Like
Helpful
Hug
Connect
I have NET ( neuroendocrine tumors) that started in my pancreas and spread to my liver.
Inoperable. I just finished 12 weeks (6 months) of chemo.
The tumors have shrunk but not sure what the maintenance program will be. Hopefully it will stay in check but preparing for other options. I'm on hospital number 3, the first 2 wrote me off last year. Very happy where I am now, but noticed that if a hospital doesn't offer a procedure it's like it doesn't exists
-
Like -
Helpful -
Hug
2 ReactionsLooks like the best thing for me to do is to keep searching for the right hospital. We were about two years into this thing.
Keep an eye on your sugar, glucose, mine would dip into the 30’s and 40’s. NET lives on the sugar in your liver. Hospital 2 fiddled around all last summer with my glucose and wrote me off. Hospital 3 started me on chemo immediately and the glucose came under control almost immediately. And, I’m still here.
Look on line for hospital’s you can get to on line. Mayo is all over the country but I’m sure there are others.
I have dozens of tumors, 10+ centimeters, after chemo there at 4+ centimeters so they are shrinking.
I may have been diagnosed to late but can’t get a straight answer from anyone, but they don’t know either.
All I can say is keep fighting and get somewhere that deals with NET on a daily bases. If you don’t like what there telling you get another option.
Good luck