Head and Neck Cancer Support Group Meeting

Description

The Head and Neck Cancer support group meets monthly on Zoom the 1st Thursday of every month from 5:00 to 6:00 p.m. Arizona time (find your time zone). All are welcome.

This virtual group is open to patients (and caregivers) who are in any stage of their treatment journey with head or neck cancers. This group fosters a sense of community amongst survivors and allows participants to both receive and offer support.

To register, contact: Katie Lespron MSW, LMSW 480-342-4005 or Lori Klusovsky PA-C ENT 480-342-2890 for additional information.

kloseknit311 | @kloseknit311 | Dec 28, 2023

How to you deal without saliva and no taste?

richardpaul | @richardpaul | Dec 28, 2023

In reply to @kloseknit311 "How to you deal without saliva and no taste?" + (show)

going through radiant I lost my taste and saliva was thick..... I had 30 treatments of rad. and the only thing for some reason I could eat fry'd eggs and home fries and peanut butter of which I could taste

cancerback | @cancerback | Dec 29, 2023

Has anyone on here had photon therapy for their neck cancer and were the results good?

richardpaul | @richardpaul | Dec 30, 2023

In reply to @cancerback "Has anyone on here had photon therapy for their neck cancer and were the results good?" + (show)

did u have surgery first...?

shielashepperd | @shielashepperd | Dec 30, 2023

In reply to @richardpaul "going through radiant I lost my taste and saliva was thick..... I had 30 treatments of..." + (show)

Taste is definitely temporarily compromised. Don't compare yourself to others because it all depends on where you were radiated and your body. The good news it is temporary and you will be back to normal or a new normal at least.
Keep forcing healthy soft foods with syrup, salts, miso glazes, avocados or whatever works to get your calories for the day. Stay focused on the end goal. It will return to normal. Hang in there!

cancerback | @cancerback | Dec 30, 2023

In reply to @richardpaul "did u have surgery first...?" + (show)

No, no surgery was proposed. this is a recurrence.

richardpaul | @richardpaul | Dec 30, 2023

In reply to @shielashepperd "Taste is definitely temporarily compromised. Don't compare yourself to others because it all depends on where..." + (show)

your absolutely right.... it's been 2 years since my last day of Radiation treatment, I had the TORS surgery to remove my right tonsil and first lymph node. I had HPV. I see my ENT doctor every six months now. for follow ups.

richardpaul | @richardpaul | Dec 30, 2023

In reply to @cancerback "No, no surgery was proposed. this is a recurrence." + (show)

may I ask u what type of cancer you had......mine was HPV of the right tonsil and the first lymph node

cancerback | @cancerback | Dec 31, 2023

metastatic cervival cancer to the supraclavicular node

rogermcintire | @rogermcintire | Jan 2 9:43am

In reply to @richardpaul "going through radiant I lost my taste and saliva was thick..... I had 30 treatments of..." + (show)

I have Merkel carcinoma and have just completed 18 radiation treatments to the left side of my face and neck. My sense of taste has completely disappeared. So far nothing I try has any taste. I have heard taste will return and am hoping this is true! Thank you for sharing!

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Head and Neck Cancer Support Group Meeting

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