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ALS Support Group Meeting

ALS Support Group Meeting

Mon, Feb 19, 2024
2:00pm to 3:00pm ET

Description

The ALS Support Group is for patient and families.  It is a peer group where people can share their tips for living with ALS and discuss coping strategies.

Meets monthly on the 3rd Monday of the month from 2pm to 3pm EST through Zoom.

Contact: Neuroscience Social Work at 904-953-0332 to be added to the group.

pclark820 | @pclark820 | Feb 19 1:29pm

How do I join this group? I am registered with Mayo Connect.

Thank you.

Pat Clark

REPLY
beadelaney | @beadelaney | Feb 20 9:32am

Hi I am in Canada and diagnosed with Bulbar Palsy ALS March 2023. I cannot speak, but have app to communicate. My biggest frustration is drooling, trying to get under control without having mouth too dry. I have tried drops and a prescribed mouth rinse with not much difference. What is recommended that has worked for PALS.? It really stops me from socializing.

REPLY
cck71357 | @cck71357 | Feb 24 11:07am

My son-in-law has same problem. We fold a paper towel multiple times and place it on his mouth (needs to be changed frequently but it works).

REPLY
2 replies
cck71357 | @cck71357 | Feb 24 12:20pm
In reply to @cck71357 "My son-in-law has same problem. We fold a paper towel multiple times and place it on..." + (show)
@cck71357

My son-in-law has same problem. We fold a paper towel multiple times and place it on his mouth (needs to be changed frequently but it works).

Jump to this post

Update on previous post you may have to double the paper towels.

REPLY
beadelaney | @beadelaney | Feb 24 1:35pm
In reply to @cck71357 "My son-in-law has same problem. We fold a paper towel multiple times and place it on..." + (show)
@cck71357

My son-in-law has same problem. We fold a paper towel multiple times and place it on his mouth (needs to be changed frequently but it works).

Jump to this post

Me as well

REPLY
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