Xifaxan

Posted by drpepper @drpepper, Thu, Jan 3 8:14am

A number of you have indicated success with SIBO using drug Xifaxan. Talked with my doctor yesterday and he said he didn't see how this would help. Said for IBS and travelers diarrhea. He reluctantly prescribed 600 mg per day for 10 days. Feedback appreciated. Thanks

Liked by astaingegerdm

@drpepper l was put on xifaxan for liver disease and it's really for constipation to help you excrete toxins out of your body especially when you can't do it naturally. The first time l was placed on it l vomited the whole next day. Then l didn't want to take it anymore. I was already on the disgusting lactulose but the doctor told me they work better together. So l gave it another try and l tolerated it fine. I take it twice a day.

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@astaingegerdm

I love Xifaxan. Over the years it has helped tremendously. I would use it a couple of times a year when things got pretty bad. There were times when it didn’t fully treat the infection. With current pricing I just can’t afford it. Don’t understand why the price skyrocketed. Maybe because people liked it. I have also been on other antibiotics- but they tend to knock out good bacteria. I’m looking into buying from Canada.

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Good RX is an app for your phone that my doctor told me about. It is free and finds the lowest price for drugs in your area. It brought Xifaxin down from $2300 (twenty three hundred dollars) along with my insurance and another coupon to $50 (fifty dollars). Yes, you read that correctly.

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WOW! Thanks

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@cindychesler

Good RX is an app for your phone that my doctor told me about. It is free and finds the lowest price for drugs in your area. It brought Xifaxin down from $2300 (twenty three hundred dollars) along with my insurance and another coupon to $50 (fifty dollars). Yes, you read that correctly.

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That’s amazing! I have checke GoodRx a couple of times, but nothing in my area.

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@cindychesler

Good RX is an app for your phone that my doctor told me about. It is free and finds the lowest price for drugs in your area. It brought Xifaxin down from $2300 (twenty three hundred dollars) along with my insurance and another coupon to $50 (fifty dollars). Yes, you read that correctly.

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@cindychesler That's phenomenal. With your insurance how much would it have been? Xifaxan was about that price, retail, when I was taking it but my insurance brought it down to $700 – $800 a month. Still a lot but my husband felt it was worth it to not have to deal with HE episodes.
JK

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@contentandwell

@cindychesler That's phenomenal. With your insurance how much would it have been? Xifaxan was about that price, retail, when I was taking it but my insurance brought it down to $700 – $800 a month. Still a lot but my husband felt it was worth it to not have to deal with HE episodes.
JK

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Insurance brought it down to about $700. My pharmacy found an additional coupon that got the Xifaxin down to $50. Plus it really helped me a lot.

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Also, I got it refilled at that price before anyone changed their mind. I haven't taken the second round or needed to yet. I guess it's my own insurance policy against needing it. I.e., if I have it, I won't need it.

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@cindychesler

Insurance brought it down to about $700. My pharmacy found an additional coupon that got the Xifaxin down to $50. Plus it really helped me a lot.

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@cindychesler So it would have cost you about the same as what we paid if not for a coupon. When I was on it we did not find any coupons that we qualified for. Also, I had heard that the retail price was lower now since the time had run out when there could not be competition from generics. I guess that is not true. That's a shame because I cannot imagine not being able to have it if you need it but can't afford it. It was a sacrifice for us but one my husband thought was worth it.
JK

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@techi

@drpepper l was put on xifaxan for liver disease and it's really for constipation to help you excrete toxins out of your body especially when you can't do it naturally. The first time l was placed on it l vomited the whole next day. Then l didn't want to take it anymore. I was already on the disgusting lactulose but the doctor told me they work better together. So l gave it another try and l tolerated it fine. I take it twice a day.

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@techi I never had a problem with xifaxan, but lactulose made me sick to my stomach. That was the justification the hepatologist used so my insurance would pay for it, she had to submit a reason. I hated lactulose, as most people who are on it do. I was able to manage with just xifaxan for almost a year.
JK

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@cindychesler

Also, I got it refilled at that price before anyone changed their mind. I haven't taken the second round or needed to yet. I guess it's my own insurance policy against needing it. I.e., if I have it, I won't need it.

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@cindychesler I'm surprised your insurance allowed you to get it refilled before it was about to run out. I am on Medicare and they seem to be very strict about that. The immunosuppressants I take are quite costly and I cannot get them refilled until a couple of days before I would run out of them, which worries me in the winter. They get refilled at a specialty pharmacy in Boston and are shipped up here so if we ran into any really bad weather that could cause a delay, or if I am going away and will need a refill during that time.
JK

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I took the first round with good results. When I followed up with my gastroenterologist, she told me I might need a second round. She went further to say that many of her patients require 2-3 rounds. There was a refill on my prescription and she advised that I go ahead and get it refilled. The insurance company did not fill it early. I am simply being prepared.

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@contentandwell

@cindychesler So it would have cost you about the same as what we paid if not for a coupon. When I was on it we did not find any coupons that we qualified for. Also, I had heard that the retail price was lower now since the time had run out when there could not be competition from generics. I guess that is not true. That's a shame because I cannot imagine not being able to have it if you need it but can't afford it. It was a sacrifice for us but one my husband thought was worth it.
JK

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The pricing structure of pharmaceuticals is certainly a mystery to me. I have no idea about patents expiring, etc. I agree, it is an absolute shame that many who need it can't get it. I wish I had gotten it years ago.

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@contentandwell

@techi I never had a problem with xifaxan, but lactulose made me sick to my stomach. That was the justification the hepatologist used so my insurance would pay for it, she had to submit a reason. I hated lactulose, as most people who are on it do. I was able to manage with just xifaxan for almost a year.
JK

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@johnbishop John my doctor nurse asked me about if l was having trouble getting xifaxan. She was telling me she can get if for me if l needed it. So l don't know what resources they have with the company but they can get it for you. I don't think it a cost but sometimes l am a little scared of things so easy. Maybe it's just me. I was taking milk thistle and when l was in the hospital they didn't give it to me because it herbal but the gastroenterologist l had told me to get it. And it's highly recommended for the liver.

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@techi

@johnbishop John my doctor nurse asked me about if l was having trouble getting xifaxan. She was telling me she can get if for me if l needed it. So l don't know what resources they have with the company but they can get it for you. I don't think it a cost but sometimes l am a little scared of things so easy. Maybe it's just me. I was taking milk thistle and when l was in the hospital they didn't give it to me because it herbal but the gastroenterologist l had told me to get it. And it's highly recommended for the liver.

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Hi Lisa @techi, Your doctors nurse may be getting samples from the company but it might be a question you could ask her. I did see that the manufacturer has discounted coupon that allows you to get it pretty cheap.

https://www.xifaxan.com/he/hcp/patient-assistance-savings-support

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