Why would my dysmotility issues be getting worse?

Hello everyone,

I’m hoping to get some input or hear from others with similar experiences.

I’ve been diagnosed with gastroparesis and esophageal dysmotility, which my doctors believe are related to my severe dysautonomia and/or lupus. I had a GJ tube placed in October to help bypass my stomach, and for a while, it worked really well — I still had some nausea but could tolerate my feeds, and venting the G-port helped.

However, things have been changing:

April: I started having very high G-tube output (often 600–1000+ mL/day). Doctors confirmed the tube wasn’t blocked or displaced.
Since then: I’ve had worsening nausea and increasing vomiting, even with J-tube feeds.
Now (August): I’m struggling to tolerate my formula at all and feel like I’m regurgitating liquids or even choking when I try to drink. It almost feels like my motility issues are spreading beyond just my stomach and esophagus.