GERD issues
I am 22 years old. I don't smoke or drink. Growing up I can remember having a slight hoarse voice in the morning if I ate to late at nights. But never anything too miserable. It would go away within a hour after drinking water.
March 2011 on a Wednesday. I woke up with a hoarse voice that never went away. After a few weeks I started to get slightly worried so I went to my family doctor. I went 3 times over a course of 5-6 weeks and they had no idea after giving me multiple steroids and antibiotics that did nothing. I also had no pain in the beginning my throat didn't hurt at all. My only symptom was the voice. So they sent me to a throat specialist. (Audiologist) He did a throat endoscopy and told me I have GERD. He prescribed me omeprazole 20mg once a day. I changed my diet. I stopped eating hours before I went to sleep. I have never been a soda drinker, I am not a fan of fatty foods. The fattiest thing I like to eat sometimes is chocolate.. So I gave that up. I don't eat big meals. I have always been a snacker. But I didn't seem to get that much better so back as planned in 6weeks. He told me to start taking it twice a day. my throat started to hurt and become really sore around this point. I would wake up in severe pain, and it would hurt through out the day. I would take 2- 20mg omeprazole and I would also drink baking soda mixed with water whenever I couldn't handle the constant burn anymore.. I wouldn't drink the baking soda/water at the same time as taking the omeprazole. I made sure I did that hours apart from one another.
So about 10-12 weeks later my symptoms got much worse. It wasn't working. Nothing seemed to work.
So I went back to the doctor. They did another endoscopy and my throat is more swollen than the first. It's starting to swell up even higher around where my thyroid is.
I started having chest pains and it has become hard to swallow anything.
My heart rate gets insanely high in random occasions.
I feel a knock/thump whenever I swallow.
My throat is always hurting.
I am nauseous when I eat.
It's painful to eat or drink anything; I have lost almost 30lbs because of it.
So I have had a endoscopy twice now,
I got a barium swallow done and he told me I have acid reflux. probe test done,.,Blood work....How many more test need to be done?
I haven’t heard my voice in a year now. It's to the point where I am becoming depressed and I ignore talking to people. I ignore hanging out with friends, because if I talk to much my throat becomes incredibly sore to the point where I won't be able to sleep. I can't yell or whisper. I have one tone. If I yell then I’m pretty much out for the rest of the day because my throat hurts so badly.
I am thinking about going to the Mayo Clinic. Has anyone else been through this? Do you think they will be able to help? Could it be something else?
Im desperate.
Interested in more discussions like this? Go to the Digestive Health Support Group.
Ref. My post upthread about my mom’s cough earlier this month….turns out it was Covid. My dad got it too! He’s 87, but improving. His cough seems worse than hers and he is fully vaxed. So far, I’ve tested negative and no symptoms. You just never know. I’m glad I insisted daddy see the doctor with his severe cough.
I’ve only started to have this problem get worse recently. I do have a tortuous colon but I didn’t think it was that serious until Three weeks ago when I ended up in the hospital for 14 days with a partial bowel obstruction and severe diverticulitis. I never had anything so painful since childbirth years ago. After I got out of the hospital my GI dr has me taking both Miralax and Citrucel but neither is helping. So I added Ducalax and that helps. I’m trying to go dairy and gluten free and trying to go more plant based but so far nothing has really helped. I would love some suggestions.
I go through cycles. I am normal from GERD. Then I will sweat alot for say a week and have bad nausea. Then I feel good after about a week or so. Then the cycle continues and can't figure out why? Any insight would help. Thanks.
GERD drugs that I have seen modify dopamine.
According to a popular dr of psychology on YouTube, the drug companies are able to direct some dopamine to or from certain neural areas, but not others simultaneously, yet.
So there's the dopamine modifier for stomach acid, but then there's the dopamine enhancer to help stomach dumping. Etc....
Doesn't even adress the causes of the GERD. Too many silos here.
Digestion and neurology have long been shown to be correlated. The same hormones and neurotransmitters effect different pathways.
What you are describing happens with my MS related GERD often. Other countries than mine often accept that MS causes swallowing and digestion issues. My publicly funded Healthcare has not figured out a comprehensive way to monitor and treat the multitude of system pathways simultaneously unfortunately at this time.
I do my own precursors to the hormones and such, and use a wedge pillow and have a liquid diet, and a nose washer. I hope that others can prevent the damage I got from the GERD while waiting for professional advice for so long. Just raise the bed or get a wedge pillow regardless of meds, the burnt up esophagus and back of the throat aren't worth it. With my neurology, I couldn't feel any of it. Had no clue sadly....
As far as the sweats, and the not sweats, the sporadic GERD...
These are consistent with an autoimmune type response, or from an altered hormone/neurotransmitter production - which could happen from neuronal injury such as concussion etc...
Many autoimmune conditions are sporadic and difficult to pinpoint. My MS "freezes" up my gut and stomach, often. Srodjen diagnosis seems to involve more glandular stuff like sweat glands, etc,
Please note that the different names for autoimmune conditions often impedes treatment.
MS is worse in heat they say, I eventually figured out its because I wasn't sweating. So they define MS by it attacking the sweat glands, but seem to limit the treatment and scope of the disease to only nerves.
Wildly, we have learned through detailed studies the number of compounds vital to human life and movement that are made almost solely in the dendrites, so dendritic damage from any cause needs A SPECIFIC RESPONSE from medication. Asap.
Autoimmune needs one umbrella, genetics another, and nerve damage with need to rebalance the metabolites and neurotransmitters and other substances IS VITAL. I can find all this stuff in pub med, right now. Restructuring medicine to actually treat these terrible diseases and symptoms is key. Prevention is another story...
So please don't mess around with the GERD.
I have been on liquid diet not just from the nerve issues, but akso from the resulting other damage caused by GERD to my esophagus, teeth and mouth from not understanding or getting treatment.
GERD consequences are extremely serious. Have seen studies that men are even less likely to look at treatments. Damage from GERD has very undesirable outcomes... use the pillow, manage food and liquid intake so as not to distended the stomach at inopportune times.... do what you can
Trying to stay positive and treat my esophagus well.
Also noted, that my GERD got worse when I stopped being able to chew solid food. I felt so hungry, I kept chugging 500ml water to try to make me feel less hungry.
This was NOT OKAY.... look up GERD from fasting....
Chugging fluid made my stomach acid way worse.
This is what essentially we are doing to babies when they are growing the stomach and appetite with milk....
We need to be hyperaware that babies probably are experiencing a similar GERD situation while their systems are trying to figure out food, nerves, digestion etc.
Getting industry to find a safe way to raise the crib at one end by say 4 " would potentially reduce mysterious ailments snd choking.... this needs to happen asap.
GERD is a big deal, hope this goes well for you...
Advocating to prevent harms for others if I can
I forgot to mention that my GERD seemed to be related to MS "hug" which is like a spasm in my gut. I have seen that GABA is the nerve spasm relaxer, they give to release snerve spasms.
Although I still get gut cramping, I had a spasm in my stomach and gut that lasted over 3 years that was just deemed a normal part of MS that has since relaxed sporadically , because I take a lot of GABA. It still gets attacked by my MS, GERD is not hone, but my girdle is less tight....
I only put this out there because there's so many exacerbating factors and causes to GERD.
GABA, dopamine, vitamin D and thyroid hormones (aldo iodine), neurotransmitters, electrolytes minerals and salts,
Diet allergens, enzymes, genetics,
So many possibilities.....
Good luck
Thanks for all the insight. Much appreciated!!!
Get the word out, preventing damage from stomach acid could save lives.
Been reading pubmed since I got sick (have pre med, but went into robotics). I feel I should be spreading this new research , as good starting point for people on their journey
My Mayo Pulmonologist told me to NOT eat or drink anything 2-3 hours before going to bed because I have pulmonary fibrosis. The problem is aspiration which can cause pulmonary fibrosis.
I’m not a medical expert but I think GERD causes a lot of havoc that has not been completely studied yet so my guess is yes. Treat the GERD and see if your symptoms improve.
I don't do PPI's like Prilosec/omeprazole but Zantac or Pepcid which are shorter acting. I don't eat after 5 or 6. Every doctor has told me GERD affects breathing. Treating GERD has really helped my breathing. At this point I rarely take anything other than Tums.