Why do almost none of the sites online mention severe itching?

Oh and for some of you, you say your itching may have been more from the meds, idk.

Last night I was laying in bed watching a show from childhood, I started crying for like 30 minutes, about an hour my entire head was in thing like poison ivy. I had to take a shower and prednisone.

Can't take my antihistamines till after urine test.

Again, this flushing and itching non stop has been since june, no matter what i do.

I have rashes that itch on and off. They show up all different places. No rhyme or reason to it. I went to the dermatologist and they could not determine what it is. Benadryl helps if it gets to the point I can’t take it anymore or I’m digging my skin. I guess it’s the wonderful world of carcinoids.

I too have a lot of itching and as weird as it sounds my ears itch a lot, like itching wakes me up. I wonder if this is NETS, liver metastasis or meds. The only new medication for me is Xermelo but itching is not a known side effect. Could this be lanreotide injections??

but when you were first diagnosed was there bad itching, from carcinoid syndrom itself

No. It started when the tumors flared up again.

No. The itching started about a month ago. I was diagnosed in October 2023.

I had a liver embolization in June and no itches all of July. However, most of August has been bad with overwhelming itches and red, hot skin, happening 2 or 3 times during the night. During the day things seem to settle down???

The liver specialist wants to do 1 more bland embolization on another lobe of my liver in hopes of controlling enzyme release he thinks is responsible for the itches.

i'm not diagnosed with anything yet, my flushing is constant for three months, still praying it's something else