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Why do almost none of the sites online mention severe itching?
I've noticed basicaly none of the medical and other sites mention itching, severe sometimes like mine or even mild like mine stays mist the time.
I do however here from others that they do have itching, most say no, I know our bodies are different, but I of course would like it to give me some peace of mind while getting diagnosed that this itching along with full time solid flushing isn't as common, some say it is but almost every site says flushing is episodic, and almost never mentions bad itching.
I know I've been a pain in the ass, sorry just scared.
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Oh and for some of you, you say your itching may have been more from the meds, idk.
Last night I was laying in bed watching a show from childhood, I started crying for like 30 minutes, about an hour my entire head was in thing like poison ivy. I had to take a shower and prednisone.
Can't take my antihistamines till after urine test.
Again, this flushing and itching non stop has been since june, no matter what i do.
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1 ReactionI have rashes that itch on and off. They show up all different places. No rhyme or reason to it. I went to the dermatologist and they could not determine what it is. Benadryl helps if it gets to the point I can’t take it anymore or I’m digging my skin. I guess it’s the wonderful world of carcinoids.
I too have a lot of itching and as weird as it sounds my ears itch a lot, like itching wakes me up. I wonder if this is NETS, liver metastasis or meds. The only new medication for me is Xermelo but itching is not a known side effect. Could this be lanreotide injections??
but when you were first diagnosed was there bad itching, from carcinoid syndrom itself