Who has had experience of an AUS cuff after prostate surgery

Posted by paulrn @paulrn, 3 days ago

I have had Holep surgery after which I had massive blood loss and since the surgery have permanent incontinence due to massive damage to the sphincter. I currently wear 6 pads per day as the incontinence is total. I have been advised I need an AUS cuff fitted through yet another operation but before then I want to investigate how successful this operation is, because I believe from most of the comments I have read this is not 100% guaranteed to stop the incontinence or even arrest it. I still have cancer left in the prostate which requires radiation after the AUS cuff is fitted. I have to say I am not happy with having his procedure or whether it will stop my incontinence as there appears to be more negative than positive responses to those who have had the AUS cuff surgery.

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jeffMar | @jeffmarc | 3 days ago

AUS works ok. I know people that are satisfied with it And one person just had a lot of problems, At this point, it’s turned around and it’s very difficult for him to press the button to pee.

Someone else in here mentioned having ProACT put in. It involves implanting small, adjustable silicone balloons on either side of the bladder neck to support the urethra and prevent leakage of urine. Somebody in here had incontinence like you did and said it worked very well. It is also adjustable.

peterj116 | @peterj116 | 3 days ago

I'm on waiting lists for an AUS.
I've read that it's 90% successful & we'd only need one light pad per day, just in case.
They last 7-10 years, but I haven't read too many bad things about them.
Looking forward to it.

peterj116 | @peterj116 | 3 days ago

BTW.... here's the difference

grandpun | @grandpun | 2 days ago

Hi "paulrn",
I'm glad to be the poster child for successful AUS 800. Mine implanted March 2023 and it works very well. I do wear one very thin pad per day. Often it catches that 'last drip', sometimes nothing, occasional stress induced leak.
In 2 years only 2 unexplained and unexpected major leaks.
Life is normal with it and blessed that it solved my 6 to 8 pad per day incontinence.
Best of luck to you and pick a well experienced, talented surgeon.
(Hint: consider finding a 'gender affirming' surgeon. Though that specialty prompts lots of political and "values" distractions, IMneverHo, they know that surgical territory and techniques the best.)

smc24 | @smc24 | 2 days ago

My AUS, Boston Scientific's AMS 800 work very well after two or three years. Going from complete incontinence to 95% was a true life changer. For me, a wise and successful decision.