What's next?

Posted by dlt22513 @dlt22513, 20 hours ago

My husband, 73 years old, has been diagnosed with a 3+4/7 one core 80% volume, 14.5 mm, perineurial invasion, PSA 8, isoPSA test 24.5. Oncotype results soon. Has not had a MRI yet, but biopsy was MRI-guided. My husband also sees a hematologist for 4 genetic blood disorders (prone to clotting). He is on a blood thinner. Has had a couple of back surgeries and has stenosis, foot drop, and one kidney (donated 50 years ago to his sister). Lots of coordination and input is going to be needed for treatment. As all of us know the waiting is difficult...post biopsy discussion then a six-week wait to get results of oncotype-DX (Yuck!). I think the six-week wait (Doctor appt) is excessive, but believe the next step will be to discover if the cancer is anywhere else and that is the time frame needed for accurate test results (MRI/PSMA) after biopsy.

We have requested the urologist to release the oncotype results to us prior to our next visit. No word yet. I really want to be prepared with questions. Our mtg after biopsy gave limited info, basically just the Gleason score and a little discussion of possible treatments. Pathology report was sent to us a couple of days later that gave more detail. Had I had the results prior to the meeting I would have had a ton more questions. I also believe my husband is going to need a multi-displinary group of specialists to decide what is best for him given his other medical issues. He has prescheduled doctor appointments with his primary doctor and his hematologist that occur before our next appointment with the urologist. So my questions is what can I do to speed things up. Do we get the primary doc and hematologist more involved now, or do we wait and let his urologist handle everything? Also when do you get a second opinion, when all the current data is in, or after a team (if one is set up) discusses. Any thoughts would be appreciated. Kind of drive my husband crazy, but he does appreciate my concern.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Self refer, if you can, to a genitourinary oncologist. They specialize in prostate cancer and have the latest information on prostate cancer.
Many urologist are less informed. Many oncologist are less informed.
He needs the best of the best of the best.
Checkout the ANCAN.org website.
They have support group videos on YouTube which will show you the kind of people they are. Watch the advanced support group videos.
Best of care to him.

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@mwilmert

Self refer, if you can, to a genitourinary oncologist. They specialize in prostate cancer and have the latest information on prostate cancer.
Many urologist are less informed. Many oncologist are less informed.
He needs the best of the best of the best.
Checkout the ANCAN.org website.
They have support group videos on YouTube which will show you the kind of people they are. Watch the advanced support group videos.
Best of care to him.

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Thank you so much!

REPLY

3+4 is the lowest Gleason score that oncologists are even willing to call "cancer", and while the perineural invasion adds a bit of extra risk, overall they've caught your husband's prostate cancer almost as early as possible, and I hope his prospects will be good. Obviously the missing kidney will be a concern when choosing medications.

Best of luck!

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@northoftheborder

3+4 is the lowest Gleason score that oncologists are even willing to call "cancer", and while the perineural invasion adds a bit of extra risk, overall they've caught your husband's prostate cancer almost as early as possible, and I hope his prospects will be good. Obviously the missing kidney will be a concern when choosing medications.

Best of luck!

Jump to this post

Yes, we hope we have caught it early! Thank you!

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