What would you say on a podcast about PCa?

Posted by anosmic1 @anosmic1, 1 day ago

I've been invited by a friend to talk on her healthcare podcast about my experience with prostate cancer over the past 13 months. I have some points I want to make, but I'm curious what the rest of you would share. What do other guys and their partners need to know? I appreciate your suggestions.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Here's my top 3 key points:
1 -- Way better to catch it early than late. Many more treatment options and better outcomes. Every guy should have an annual psa baseline since next step is no longer a biopsy (infections from unnecessary biopsies was why they originally discouraged routine psa testing for guys).
2 -- if diagnosed, good idea to get a 2nd treatment opinion from NCI recognized CCOE (if option). Expertise matters with prostate cancer treatments. Need to seek highly qualified doctors for best outcome.
3 -- if diagnosed, really need to educate yourself and not just "accept" whatever the doctor suggests since you'll be living with the outcome.

REPLY

I attended a 1 hour podcast called Her with Doctor Pamela Peeke about 2 years ago. She’s the medical advisor for Embrlabs. She wanted to talk about how “men get hot flashes too”. We spent an hour discussing my prostate cancer, the treatments, and how the Embrlabs Wave device helped with managing my hot flashes.

It was quite well received by the audience.

Here is a link to the podcast, Maybe it will give you some ideas about what to talk about.
https://support.doctorpodcasting.com/client/her-radio/item/45742-men-get-hot-flashes-too

REPLY
Profile picture for retireditguy @retireditguy

Here's my top 3 key points:
1 -- Way better to catch it early than late. Many more treatment options and better outcomes. Every guy should have an annual psa baseline since next step is no longer a biopsy (infections from unnecessary biopsies was why they originally discouraged routine psa testing for guys).
2 -- if diagnosed, good idea to get a 2nd treatment opinion from NCI recognized CCOE (if option). Expertise matters with prostate cancer treatments. Need to seek highly qualified doctors for best outcome.
3 -- if diagnosed, really need to educate yourself and not just "accept" whatever the doctor suggests since you'll be living with the outcome.

Jump to this post

I concur. And to insist on a PSA test starting at age 45 even if your PCP cracks up (as has happened to me).

REPLY

Honestly, the comment that would have the most impact on guys: "It's not necessarily a finger where the sun don't shine - it's just a blood test, these days. Ask your doc for a PSA blood test".
(end podcast)

REPLY
Profile picture for peterj116 @peterj116

Honestly, the comment that would have the most impact on guys: "It's not necessarily a finger where the sun don't shine - it's just a blood test, these days. Ask your doc for a PSA blood test".
(end podcast)

Jump to this post

@peterj116 -- You're sooooo right!

REPLY

"Only you can decide what balance of quality vs quantity of life is right for you."

REPLY

I would point out that even though prostate cancer may be more treatable (for some men not all) than other cancers, it still sucks. It is not the “good cancer”

REPLY
Profile picture for johndavis60 @johndavis60

I would point out that even though prostate cancer may be more treatable (for some men not all) than other cancers, it still sucks. It is not the “good cancer”

Jump to this post

John, thank you for pointing out cancer sucks part. I am grateful my forever meds keep working, but sometimes I just want to scream that this is no walk in the park. Well at least they can control it doesn't make it any easier. I try to put on the good game face so I'm not the one who brings down the room. It is one heck of a game changer going through what we do. Sorry for going off rails here, but thank you for your post. Best to all.

REPLY
Profile picture for stevecando54 @stevecando54

John, thank you for pointing out cancer sucks part. I am grateful my forever meds keep working, but sometimes I just want to scream that this is no walk in the park. Well at least they can control it doesn't make it any easier. I try to put on the good game face so I'm not the one who brings down the room. It is one heck of a game changer going through what we do. Sorry for going off rails here, but thank you for your post. Best to all.

Jump to this post

You are definitely NOT off the rails, Steve. You are the living, breathing example of why men need to be tested earlier than previously thought.
People only listen sometimes after they’ve been ‘scared straight’!
Phil

REPLY
Profile picture for heavyphil @heavyphil

You are definitely NOT off the rails, Steve. You are the living, breathing example of why men need to be tested earlier than previously thought.
People only listen sometimes after they’ve been ‘scared straight’!
Phil

Jump to this post

In my case, it all started and blew up in between yearly physical/PSA checks.

REPLY
Please sign in or register to post a reply.