Neuropathy: What works and what are scams?

Posted by bigjohnscho @bigjohnscho, May 2, 2024

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

Interested in more discussions like this? Go to the Neuropathy Support Group.

I am glad that it is helping if only somewhat. What continues to worry me is that you must have researched it on your own and had to mention it to your doctor. Was it by any chance a neurologist or just a GP? Susan

REPLY
@scain

I am just joining this chat and also have foot neuropathy....I was diagnosed with Diabetes 2 18 mos. ago and I waited months to see a endocrinologist thinking that he would be able to help out with this problem. Basically, have little feeling on the soles of my feet and my left foot and ankle can sometimes be swollen. My primary doctor was worried about blood clots but ultrasounds showed nothing. Of course, I never heard from her again.....I have very little faith in my primary doctors. The endocrinologist asked me to take off a shoe and rubbed the outer edge of my foot with something and said that the neuropathy isn't diabetes related. I asked him who should I see and he said a neurologist for an overall workup. That was in the fall and I called the neurologist for an appt. and the first available was March so I am waiting for that.
Hopefully, they might have an answer. I have read these chats and it appears that there are a lot of scams going on but I haven't had any experience so far but of course, I haven't delved into this problem much. Just waiting for my appointment. Was your neuropathy diagnosed by a neurologist? Any wisdom would be appreciated as I am a novice on this subject. Thanks

Jump to this post

@scain ....Hopefully my experience dealing in the past with same issues will help you..
-a neurologist will do zillion of tests, the most important is a large nerve electrical conduction test-if positive -the neuro will tell you there's no treatment for peripheral neuropathy and put you on Gababentin...a neuro is not doing test for small fiber neuropathy...
-a podiatrist will do a skin biopsy for small fiber neuropathy ( SFN)-if positive-the podiatrist will tell you there's no treatment and put you on Gababentin...or propose to put you on TEENS unit...
After going thru all these for three years and due to my excruciating symptoms- I was desperate and almost suicidal...but God providence guided me to a clinical pain institute doing Sanexas treatment ( google it) and B12 shot straight into my feet..it turned out my peripheral nerves were starving for B12 which was prevented by metformin to be absorbed....of course my primary not even wanted to hear about it although my B12 in system was double level.
After just three month and twice /week treatment with Sanexas (stopped metformin and replace it with jardiance ) and some other life style changing -I'm completely healed...
Hope this help!

REPLY
@gramma48

I agree. Total scam. I have been asking for a refund for over 2 months. All they tell me is that they are sending me something else “at no charge”. All I want is a refund. Period! No response. Guess if they don’t respond long enough, my “trial period” will expire. All this item did was shock me. Don’t have anything to do with this company.

Jump to this post

I think I just ordered one. Do you remember the name of it?

REPLY
@sh0rtie

Has anyone heard of Nerve Forte to help with the pain and numbness of neuropathy? How about MMP13 enzyme that is suppose to be the root cause of neuropathy? Can't get a good nights rest due to itching and stabbing pains in feet. I have a pair of reflexology shoes that I wear in the evenings and they seem to help some. I am open to suggestions for help. Thank you, Laura Henderson

Jump to this post

I purchased Nerve Forte. After 2 months of following the bottle instructions, I found no improvement, no relief, or no indication that this product helped me. True, the ingredients may be good for you, but as far as the improvement of neuropathy NO. Please think twice before purchasing this product.

REPLY

I had breast cancer many years ago and a short time later my feet started to tingle. Eventually my feet got worse and then my hematologist said the neuropathy was caused from one of the chemotherapy used for my breast cancer. You can’t win!

REPLY
@valyruss

@scain ....Hopefully my experience dealing in the past with same issues will help you..
-a neurologist will do zillion of tests, the most important is a large nerve electrical conduction test-if positive -the neuro will tell you there's no treatment for peripheral neuropathy and put you on Gababentin...a neuro is not doing test for small fiber neuropathy...
-a podiatrist will do a skin biopsy for small fiber neuropathy ( SFN)-if positive-the podiatrist will tell you there's no treatment and put you on Gababentin...or propose to put you on TEENS unit...
After going thru all these for three years and due to my excruciating symptoms- I was desperate and almost suicidal...but God providence guided me to a clinical pain institute doing Sanexas treatment ( google it) and B12 shot straight into my feet..it turned out my peripheral nerves were starving for B12 which was prevented by metformin to be absorbed....of course my primary not even wanted to hear about it although my B12 in system was double level.
After just three month and twice /week treatment with Sanexas (stopped metformin and replace it with jardiance ) and some other life style changing -I'm completely healed...
Hope this help!

Jump to this post

Thank you so much for the great info. I will research your info. Glad to hear you are doing better. Susan

REPLY
Please sign in or register to post a reply.