Neuropathy: What works and what are scams?

Posted by bigjohnscho @bigjohnscho, May 2, 2024

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

Interested in more discussions like this? Go to the Neuropathy Support Group.

@cit10jetjockey

I give up, why aren’t criminal charges brought up against these scammers. Theft by deception is a crime. And that’s what these scammers are doing.

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I agree. These people are despicable. But, I suppose that there are some of their patients with less severe pain that actually do receive some form of relief, even if it's all in their head. So, the scammers can use them as proof that their "system" actually does work. It might take a class action suit to bring them down. Then, how would you even find all the people taken in by these phonies?

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I think you’re referring to Sackett of Purdue Pharma.

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I am so sorry to hear from you all about your problens and GO Syndrome (Growing Older!!!)

I sent in a detailed response regarding my experiences but not sure it got read or distributed??!!

I am an 80 year old Vietnam Veteran and have been suffering from PN for about 8 years now as it has gotten so much worse. I have tried about everything out there including 2 Ketamine treatments, ablation treatments, alll kinds of useless pills and supplements and nothing has helped much!!? I use a lot of Sombra Lotion and gives some temporary relief that I purchase through Amazon as they started raising the price when they got positive feedback!!

My PN has now spread from my feet up through my knees and all around my midsection and back down through my groin. Also arms are now numb with tingling, itchy pain that is all over my body and even now extending into my face eyes, ears and left side of face. I a recovering from a terrible case of Covid (worst flu I have ever had in my life) and wished God would call me up at time. My stong belief in God, the love of my life and BFF lovely wife and my fabulous and caring family I am now back and will start light exercies this week and walking with the Hike shoes.

Unfortunatly old age and disease seem to affect us all differently, but I keep praying to our Lord and Savior that something will be found soon to help at least curb some of the terrific pain. Maybe now that we have some good and carring leadership in this once wonderful country we will continue to immerge!!! I am also highly allergic to meds and opiates so nothing there. The stupid people at the ER VA here in Western Colorado even prescribed taking Predizone which is really bad stuff- knocked out my immune system and gave me double pneumonia back many years ago!!! The VA has really slipped around here again!! Semper Fi

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