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Neuropathy: What works and what are scams?

Posted by bigjohnscho @bigjohnscho, May 2, 2024

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

Interested in more discussions like this? Go to the Neuropathy Support Group.

ann78 | @ann78 | 1 day ago
In reply to @harley22 "I’m in the same situation as you. My neuropathy started when I was 60, which was..." + (show)
@harley22

I’m in the same situation as you.
My neuropathy started when I was 60, which was 12 yrs ago.
My balance is awful, can’t walk without a cane or walker, and I need a wheelchair because I can’t walk long distances anywhere.
I can’t even find shoes that are comfortable to walk in,as they hurt daily.
Some days I’m at my wits end with the pain, and I take Tramadol 2 tabs daily along with Ibuprofen for pain relief.
None of the many neurologists that I’ve had over the years, has helped me.
I’ve also been on Gabapentin 2400 mg daily for few years, and it did not work for my pain and numbness.
Also have been on many of the routine neuropathic drugs over the years, with no relief from them either.

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Beware of scams, usually by chiropractors that charge you upfront over $8,000 for treatment that made my pain worse.

REPLY
rich12019 | @rich12019 | 1 day ago
In reply to @ray666 "Hi, rich12019 (@rich12019) I'm 79. I have idiopathic large-fiber PN, so no pain but terrible balance...." + (show)
@ray666

Hi, rich12019 (@rich12019)

I'm 79. I have idiopathic large-fiber PN, so no pain but terrible balance. The invisible onset of my PN was 10-12 years ago, but I wasn't given an "official" diagnosis until August 2022. That's when I started reading up on PN. That's also when I began to be bombarded with scam come-ons. Fortunately, I managed to duck the come-ons. An honest, caring neurologist and on-and-off PT have kept my PN at bay––plus a sepsis infection, which put me in conversation with a new team of specialists (infectious disease), instilling in me the value of good nutrition. I can still hear those specialists saying, 'Protein, protein, protein!' 🙂

I wish you the very best of the New Year!
Ray (@ray666)

Jump to this post

I drink a high protein shake each morning with my Dr Mercola’s multivitamin.
Nothing works and that was my prognosis 6 yrs ago…that nothing works
-Rich

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