Neuropathy: What works and what are scams?

Posted by bigjohnscho @bigjohnscho, May 2 6:09am

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

Interested in more discussions like this? Go to the Neuropathy Support Group.

bigjohnscho | @bigjohnscho | Aug 24 10:20am

Do you mind me asking where you purchase your R-ALA
from.

John, Volunteer Mentor | @johnbishop | Aug 24 10:43am

In reply to @bigjohnscho "Do you mind me asking where you purchase your R-ALA from." + (show)

The Na-R-ALA that I take is included in the protocol of neuropathy supplements that I take (4 capsules in the morning, 2 at noon, 4 in the evening). I attached a Why the Protocol PDF document with links including the research for each of the supplements and there is a link to the site where the protocol group orders the monthly supply.

I haven't taken this Immunovites brand but it's similar to what I take. It says 600 mg per serving and a serving size is 2 capsules - https://www.amazon.com/Stabilized-R-Alpha-Increased-Absorption-R-Lipoate/dp/B07DP8DHBH/

Shared files

Why the Protocol (Why-the-Protocol.pdf)

cb3 | @cb3 | Aug 24 2:21pm

In reply to @pattic "I have peripheral neuropathy in both legs which is very painful. My neurologist prescribed Baclofen for..." + (show)

@pattic

Have you experienced any side effects from Baclofen? I'm glad you have found comfort.

pattic | @pattic | Aug 24 2:27pm

I have not had any side effects while taking Baclofen. I think it’s a good idea to research what the side effects are before you take a new medication.

oneyeddie | @oneyedward | Aug 25 9:14am

In reply to @johnbishop "I haven't had any side effects taking -R-ALA. I do have my days of feeling tired..." + (show)

I have been using MAGNELIFE leg relaxing cream and Ultima Replenisher electrolyte mix with off and on good results. I know this is bad to uses but Gator Aid works every time. I will try R-ALA.

richardr | @richardr | Aug 25 12:09pm

PDE5 inhibitors as possible treatment for PN.....2mg daily dose restores and maintains micro-circulation to the Myelin sheath and peripheral nerves. Has anyone used this or read about this for peripheral neuropathy ? My sister-in-law had amazing resolution of her Raynaud's disease with this medication.

John, Volunteer Mentor | @johnbishop | Aug 25 12:42pm

In reply to @richardr "PDE5 inhibitors as possible treatment for PN.....2mg daily dose restores and maintains micro-circulation to the Myelin..." + (show)

I did a quick search of Connect and didn't see any other members who have mentioned using PDE5 inhibitors for neuropathy but I did find some research on the topic. Haven't seen any clinical trials or studies though.

"Peripheral neuropathy: A report was published suggesting that daily use of PDE5 inhibitors, through improved blood flow through vasa vasorum, helped alleviate peripheral neuropathy symptoms."
-- PDE5 Inhibitors: https://www.ncbi.nlm.nih.gov/books/NBK549843/

irr4et | @irr4et | Aug 25 2:08pm

I fell very hard onto my chin and beast bone two mos ago. Resulted in concussion. Ever since I have had vibrations and burning through my body plus bad burning headaches and fatiguing so easily. Even regular walking causes a flare up of these symptoms. I get very sleeping after digesting food. I already had Fibromyalgia. Does anyone know how long recovery will be?

richardr | @richardr | Aug 25 2:20pm

In reply to @johnbishop "I did a quick search of Connect and didn't see any other members who have mentioned..." + (show)

John, thanks for your reply and for the link. This is a 2023 article and the summation certainly indicates that this may in fact be a valid treatment possibility for PN. As I said earlier my sister-in-law is symptom free of the Raynaud's for one year after starting treatment. Let's hope Mayo Clinic will pickup on this and research this possibility. Thanks, Rick

bobm47 | @bobm47 | Sep 12 3:41pm

I just finished chemo for lymphoma and have neuropathy in my feet and hands but alo a balance problem.
I have been taking the supplements recommended with little to no affect.
Any suggestions where to start. Has anyone tried Nerve Fresh? It claims it was tested in major colleges.?