What to expect on first visit to gastro

Posted by butterflykizzs @butterflykizzs, 20 hours ago

I am about to go but am hesitant. It is a long trip and a lot of cost for me.
I read online a lot of great stories but also a lot of people who said they got no help and no promised test and diagnosis and wasted their time and money.
I thought I would ask how it went for any of you. Reason I am going is because I have multiple rare and complex issues going on at same time and nobody in my state understands what to do or they do not listen and hear me and refuse to take the time to understand or test.
It is scary! Mayo is a last resort for me. Please share any good or bad so I can make a choice.
Thanks so much!

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I wish you could be more specific about what the medical issues are. I had a rare condition and was later diagnosed with fistulizing Crohn's. The first Dr I saw referred me to a Colo/Rectal surgeon who told me to quit smoking and drink Ensure. He referred me to a Gastroenterologist who ordered a colonoscopy which couldn't be done because the fistula connected my ileum to my vagina. The prep didn't empty my colon at all. By this time months have gone by and I landed in the ER at high risk for death.

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