What to do? ED from treatment for metastacized colon cancer

Posted by joseph1952 @joseph1952, Feb 7 12:03pm

It started out as coln cancer mataistisized to my liver then lungs headed to my brain . Thru all the treattments iI now have E D from one of the medications or something
Really sucks

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nycmusic | @nycmusic | Feb 8 10:25am

So sorry for all you are going through…consider going to Colontown, a site specifically for CRC, where patients can interact/help each other and learn…they also have a lot of well-curated info…some very good , more experienced/expert people monitor and guide people to as much info as possible.

popobrady | @popobrady | Feb 8 1:15pm

Joseph,
I’m sorry to hear of the progression of your condition.
Metz to your liver & brain must be truly frightening. One can only hope that your quality of life remains fulfilling and you are able to experience life’s many pleasures for the rest of your journey.
This wretched disease affects so many aspects of our physical and mental health that it can’t be truly felt unless it’s experienced.
My prayers are with you !!

kbinnc | @kbinnc | Feb 8 1:40pm

I agree that Colontown, while I hate the name and was initially put off by the kind of cutesy thematic names for various groups on the site, has a lot of good info, groups specific to specific kinds of CRC, all sorts of specific issues with people who are in similar boats. The website is colontown.org. They are not on Facebook.

joseph1952 | @joseph1952 | Feb 9 2:22pm

In reply to @popobrady "Joseph, I’m sorry to hear of the progression of your condition. Metz to your liver &..." + (show)

@thx but my sex life is important t o mepopobrady

joseph1952 | @joseph1952 | Feb 9 2:24pm

I try to do it myself but nothing happens
I get aroused semi hard but
... alss nothing

nycmusic | @nycmusic | Feb 9 6:47pm

In reply to @nycmusic "So sorry for all you are going through…consider going to Colontown, a site specifically for CRC,..." + (show)

@nycmusic some people are put off by the name and some category names. …set that aside, worth trying..I learned a lot there, some very useful patients’ tips.

jmwallop | @jmwallop | Feb 10 2:37pm

What is Colontown? I haven’t heard of it?

nycmusic | @nycmusic | Feb 11 7:45am

In reply to @jmwallop "What is Colontown? I haven’t heard of it?" + (show)

@jmwallop it is a site for colorectal patients—information, and patients asking questions, sharing useful tips, being a sympathetic shoulder….they post info links and doc talks…often hear about latest meds/procedures there…i use it for myself and to keep up on info for friends,,,it is probably one among several- check it out.

jmwallop | @jmwallop | Feb 11 9:06am

In reply to @nycmusic "@jmwallop it is a site for colorectal patients—information, and patients asking questions, sharing useful tips, being..." + (show)

@nycmusic
Thank you, I was diagnosed and treated for rectal cancer 8 years ago. I didn’t know if I should be involved since I had a different type of cancer.

nycmusic | @nycmusic | Feb 11 4:06pm

In reply to @jmwallop "@nycmusic Thank you, I was diagnosed and treated for rectal cancer 8 years ago. I didn’t..." + (show)

@jmwallop hi, it really should be called colorectal whatever…don’t let the name and some of their category names distract…there are many rectal cases…it doesn’t matter if your case is in active treatment or not..I’m always glad if I can offer useful suggestions and love the info.