What should I do?

Posted by hallo643 @hallo643, 11 hours ago

I got an ileostomy 3-4 months ago. My hospital stay was terrible. I was in the hospital for three weeks with an ileus. My bowels have not really gone back to normal after surgery.

For background, the ostomy only works with me laying down and with eating easy to pass foods. If I stand, not much will come out, but if I go and lay down it freely passes. They think it is because of my adominal wall is pushing on the stoma. They did a contrast and found that there is intermittent narrowing when standing at the stoma (which I was saying) but resolves when laying down.

Anyways, the hospital/doctors arent being helpful. I have been to the ER three times! and all they want to do is send me home. I have been surviving off 1000 calories or less for the last 7 weeks since discharge. I am constantly nasceous, in TERRIBLE (knives) pain at night that I cannot sleep, but they keep telling me that my labs are "fine" and that I need to seek second opinions. Problem is, the nearest hospital to me has a wait time of 6 weeks! I can't eat, sleep, and I am in constant pain!

I keep trying to get temp tpn to give my bowels a break and to get SOME nutrition because I can't hardly eat anything. I wouldn't be surprised if they gave me a short course of tpn (like 45 days) for that to relax my adominal wall and for gut to get back in rhythm. But they deny that even though I can hardly eat anything and vomitting. I feel like my guts got "stressed" after surgery and giving them time to rest would fix everything.

What do I do?

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