What is the average age of the gentlemen on here?

Wow, I cannot imagine getting that diagnosis 😢. I’m happy to hear you are doing so much better now. I have been doing a lot of research on his behalf since it is too overwhelming for him to go there. This forum site and another have been extremely helpful.

Thank you for sharing your story. Prayers that you continue to improve and heal.

The initial diagnosis was traumatic for me in January. My PSA was 359. PC was my tastic to lymph nodes and bones. I have been on Abiraterone For four months and my PSA is now .24 and I feel great, except for my decreased libido and occasional flashes. I hope that everything goes well for your husband. You will both be learning a lot about PC and various treatments. Educating yourselves is the key to getting good treatment. Best wishes!

My husband was diagnosed today after a biopsy last week. He is 52. He had rapidly rising psa numbers, a clean mri but a 4k test that came back at 80. He has a PET scan scheduled in 2 weeks. Based on weird symptoms he’s been having throughout his body for months now, he is convinced it’s not contained. Hopefully he is wrong. We are in the process of transferring his care to the Mayo.

I'm 78 yrs young and live in western Montana. I went to a Urologist in 1987 when I started having problems with ED. He did a PSA test, 'n it was at a 6. He started me on 5mg Cardura tablets taken daily as I was diagnosed with BPH. For the next 20+ years my PSA numbers went up and down. In 2008 I retired and moved from SoCal to Montana and started to see a VA Urologist, he performed a biopsy, but no cancer was found, even tho my PSA number had by then leveled up to between 12 'n 15 as I aged. That Doc added a 5mg Finasteride tablet to my daily regiment and it lowered my PSA score, but the combined side effects of the 2 drugs was a significant loss of my libido, so my Lady & I just learned to live with it.

In 2019 my Lady passed away from a sudden cardiac arrest, and a year later I started to date again, so I asked my VA Doc about the libido problems, and he suggested I start using a 5 to 20mg tablet of Cialis taken daily to relieve the BPH symptoms, and I ended up using 20mg. Within a few months I could pee like a race horse again and my libido sky-rocketed, but my PSA levels went up to 20. Last month my urine stream started to diminish, 'n 3 weeks ago it shut-down, so I went to the hospital, and they catheterized me... I'm still wearing the bag. Saw a Urologist a week later, and he ordered a blood test and my PSA was now at 32. Upon a rectal exam, nothing was noted, so he suggested either a rectal biopsy or a prostate MRI w/contrast. I did the MRI at St. Patrick's Hospital in Missoula, MT last week, and tho the test was negative for any signs of cancer in or around my prostate, its size was a large 143 grams, squeezing against the urethra. My Urologist suggested a Cystoscopy be performed, and it's scheduled for next week.
After much research, on all procedures to correct my large prostate, I've decided to have HoLEP Laser surgery performed. My present Urologist doesn't do that type, and there's only one surgeon in MT that's highly skilled 'n qualified to do that procedure, and that's Dr Garrick Simmons of 5 Valleys Urology in Missoula. If any readers here are Veterans, yes the VA covers that surgery cost fully, just be sure you get your Urologist to make the recommendation to get the approval/referral letter from the Community Care division at the VA.

Your experience post RP sounds about as close to mine as I have read here and Thankyou for providing so much detail. I’m about 15 months post RP now and still experiencing meatal pain and discomfort which was never described as possible stenosis.
I did finally have a cystoscopy after a year of suffering.
Initially my pcp was chasing possible yeast infection which apparently I never had. After going to an infectious disease doctor and testing for any infection none was found, I had cystoscopy in the office( almost jumped through the ceiling) ouch!
He was able to pass the scope with some difficulty all the way to the bladder and reported scar tissue all the way up through. Because my stream is fairly good now I’m waiting and consulting long distance with Mayo urology in hopes of more improvement as I have noticed some since I quit trying to relieve the soreness with topical creams or gels which may have made it worse. The cystoscopy did not help irritation either. Incontinence is no longer a problem for me and lasted about 3 months. ED is still and honestly I don’t expect this to ever be back to pre surgery but still have some hope of some improvement without the drastic procedures I’ve read about. My age is 66, married, and had my surgery at 65 after 3 years of active surveillance.
Like you I never had symptoms but this is common.
I wish you well on your journey.