What are some ways to try to minimize neuropathy during chemo?

Posted by brighterdays @brighterdays, Apr 13, 2023

Does putting your hands and feet in ice before starting infusion help? What about after your cycle at home? Will continuing to ice it help?

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@kjlehman

Can you tell me which mittens and socks did you order from Amazon?

Thanks.

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https://a.co/d/itcoUT7
These are the ones I used during my 12 weeks of Taxol

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I bad 18 rounds of chemo. I used the ice mittens, booties/slippers and knit cap. Each one contained a gel insert that you keep in the freezer. You take it to your treatment in a small cooler and put them on a few minutes before your chemo treatment. The chemo nurses insisted that this was an important thing to do. My hands are good, I have a small amount of numbness in my toes. The ice cap might have spared some of my hair, but I lost a lot of it. Your fingers and toes will feel very cold. When it was too much I had to pull them out for a minute, but just a minute. I ordered from Amazon and do not recall the brand, but read the reviews and find some that are highly rated. A step well worth taking, in my opinion.

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@cjs123172

Hello, I had 12 weekly treatments of Taxol, which is notorious for causing neuropathy. I bought chemo ice pack mittens and socks online on Amazon and used them all twelve weeks. I put them on as soon as the Taxol started and tried to use them the entire infusion. They were pretty cold! I transported them in small cooler so they wouldn't melt beforehand. I will say it was a bit miserable, but it worked. I had no neuropathy. My oncologist was impressed; she said most people get something with Taxol, but I did not. I didn't use them after my treatments, only during the infusion.

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Can you tell me which mittens and socks did you order from Amazon?

Thanks.

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@meags

I had hormonal resistant cancer and am now on letrozol 2.5 mg daily. My hands and wrists are suffering especially at night.
I am unable to make a fist as my fingers get to a point before the stretching/ locking pain is too much.
I have debilitating constant sharp pain through the tendon in my wrist aswell. Help please

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Hi @meags, there are several helpful discussions about neuropathy both in the Breast Cancer support group and the Cancer: Managing Symptoms support group.

You might find these helpful:
https://connect.mayoclinic.org/search/discussions/?search=Neuropathy+and+chemo

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@meags

I had hormonal resistant cancer and am now on letrozol 2.5 mg daily. My hands and wrists are suffering especially at night.
I am unable to make a fist as my fingers get to a point before the stretching/ locking pain is too much.
I have debilitating constant sharp pain through the tendon in my wrist aswell. Help please

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Good morning
No I actually haven’t. But worth looking into. I have had to stop taking my Letrozole to see if the pain stops. Fingers crossed it does and it’s not permanent.
Unfortunately I do have to continue with some form of hormone tablet.
One day at a time I guess

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@meags

I had hormonal resistant cancer and am now on letrozol 2.5 mg daily. My hands and wrists are suffering especially at night.
I am unable to make a fist as my fingers get to a point before the stretching/ locking pain is too much.
I have debilitating constant sharp pain through the tendon in my wrist aswell. Help please

Jump to this post

My husband has a different type of cancer but also suffers from neuropathy, so I thought I would see if I could think of anything that was recommended for him. I believe that his doctors told him that taking vitamin B6 may slow down the damage. Have you been told that or tried that? I will ask him if he recalls them recommending anything else.

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@eku

Hello @meags ,
I'm on 1mg of anastrozole for the past 20 months (among other things). I've had trigger fingers on my right hand and was referred to an orthopedist. I did 2 months of occupational therapy first (wrapped my hand in heated blankets, hand massage, massage with an ultrasonic vibration tool), wore a splint. It felt good during the therapy but only worked briefly so she injected cortisone to my finger and I've been -mostly- fine. When I make a fist with my hands, I can feel the difference between the left and the right. My right hand is a bit numb and stiff. Mine is bad especially in the mornings.

Try an orthopedist who works on hands. Mine was aware of the aromatase inhibitor side effects.

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Thanks for your reply. It’s great to get advice from those going through the same thing.
Take care and thanks again.

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@meags

I had hormonal resistant cancer and am now on letrozol 2.5 mg daily. My hands and wrists are suffering especially at night.
I am unable to make a fist as my fingers get to a point before the stretching/ locking pain is too much.
I have debilitating constant sharp pain through the tendon in my wrist aswell. Help please

Jump to this post

Hello @meags ,
I'm on 1mg of anastrozole for the past 20 months (among other things). I've had trigger fingers on my right hand and was referred to an orthopedist. I did 2 months of occupational therapy first (wrapped my hand in heated blankets, hand massage, massage with an ultrasonic vibration tool), wore a splint. It felt good during the therapy but only worked briefly so she injected cortisone to my finger and I've been -mostly- fine. When I make a fist with my hands, I can feel the difference between the left and the right. My right hand is a bit numb and stiff. Mine is bad especially in the mornings.

Try an orthopedist who works on hands. Mine was aware of the aromatase inhibitor side effects.

REPLY

I had hormonal resistant cancer and am now on letrozol 2.5 mg daily. My hands and wrists are suffering especially at night.
I am unable to make a fist as my fingers get to a point before the stretching/ locking pain is too much.
I have debilitating constant sharp pain through the tendon in my wrist aswell. Help please

REPLY

I also had taxol/carboplatin. My oncologist never mentioned using the cold packs and suggested the cold caps did not help much for hair loss, but the chemo nurses highly recommended. I used cold gloves, slippers and hat. All ordered online. I have normal feeling in my hands and just some slight numbness in my toes. The hat did not prevent hair loss, but I did not lose it all. I know others who had the better cold cap, which is not always offered at chemo centers and was not at mine, and it was effective in keeping hair. I am a year and a half from completing chemo and my hair is still a long way from being presentable. I am managing well with wigs until then.

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