Welcome to the NETs Group! Come say hi.

Posted by Teresa, Volunteer Mentor @hopeful33250, Jan 20, 2017

Hello and welcome
Let's pull up our chairs in a circle and check in with each other and talk about how we are doing with our NET diagnosis. Any new tests, meds or treatments going on for you? What about your symptom control? Any concerns you have?

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

wordnoid | @wordnoid | Jan 20, 2017

Nice to see another group! I started on long-acting Octreotide at the end of November and am doing really well.it has been a miracle drug for me--fatigue and nausea completely gone. I never did the self-injection because my first two tries of that produced a mild allergic reaction--which the hospital pharmacist has seen more with the short-acting than the long.

Teresa, Volunteer Mentor | @hopeful33250 | Jan 20, 2017

Yes, I would invite you all @amyh2439 @tresjur @joannem @gaylejean @lucci50 @derekd @gulzar @joanney @jenchaney727 @dzerfas @lorettanebraska @wordnoid @trouble and @upblueeyes. to "click" on the "Following" icon in the NETs group so that we can keep in touch whenever someone posts a question or concern. This will help keep us more engaged with each other. Remember: We are stronger together!