Watching a Meningioma Brain Tumor

Posted by robinem @robinem, Feb 8, 2018

I've just been diagnosed with a 2cm meningioma tumor on the right front of my head. I am 59 years old and the surgeon has told me I will need to "do something" with my tumor someday since I am younger. What is the benefit of waiting?

Interested in more discussions like this? Go to the Brain Tumor Support Group.

Profile picture for Colleen Young, Connect Director @colleenyoung

@bellachele68, welcome. What type of surgery will you be having? Is gamma knife an option for you?

@pixie49247 and @courtneyizquierdo, checking with you two too. How are you doing?

Jump to this post

Hey there. New Dr says it grew 1mm in 6 months and bc of the location, he doesn’t recommend surgery. He recommends doing radiation over the course of a month in small doses.
I would prefer 1 dose witn the gamma knife so I’m praying that is a good option. Many thx for reaching out. How are u doing?

REPLY
Profile picture for bellachele68 @bellachele68

👋 I had a similar opportunity to wait and watch on two meningioma lesions. One is not located in an area they feel comfortable removing the growth from and is about 5/8 inch. The other is approximately 1 inch and in an easier location to remove. I decided not to watch and wait on removing the one inch growth. I will be 55 in July, But I am not going to get younger or healthier. If this is remotely connected to some fatigue, foggy thinking, memory problems, I don’t want to continue battling the frustration. My symptoms could also be menopause related, or related to my autoimmune (Hashimotos)—however this is a known factor and will only eventually have to come out, so I have asked my neurosurgeon to schedule the procedure at the end of August.

Jump to this post

@bellachele68, welcome. What type of surgery will you be having? Is gamma knife an option for you?

@pixie49247 and @courtneyizquierdo, checking with you two too. How are you doing?

REPLY

👋 I had a similar opportunity to wait and watch on two meningioma lesions. One is not located in an area they feel comfortable removing the growth from and is about 5/8 inch. The other is approximately 1 inch and in an easier location to remove. I decided not to watch and wait on removing the one inch growth. I will be 55 in July, But I am not going to get younger or healthier. If this is remotely connected to some fatigue, foggy thinking, memory problems, I don’t want to continue battling the frustration. My symptoms could also be menopause related, or related to my autoimmune (Hashimotos)—however this is a known factor and will only eventually have to come out, so I have asked my neurosurgeon to schedule the procedure at the end of August.

REPLY

Thanks. I hope I’m as lucky as you that I’ll just wait and watch . I see the neurosurgeon in 3 weeks.

REPLY
Profile picture for pixie49247 @pixie49247

I just found out I have a small one on a MRI for something else. I’m getting an appointment with a neurologist. I’m hoping for a wait and watch. Thankfully most are benign. I’m pretty scared right now

Jump to this post

It is scary. But hopefully you will find that it stays small and doesn’t cause you any problems. It’s stressful to live with but it’s better to have a meningioma than the type that are cancerous. I’ve managed to live 14 years with mine and on the last check it had not grown at all as compared to the previous year. Good luck to you.

REPLY
Profile picture for mwhitejasp @mwhitejasp

I was diagnosed in 2020 with a 2cm olfactory groove meningioma. I’ve seen 5 neurosurgeons and they all suggest different approaches. I’m so confused! One surgeon recommends Gamma Knife, another recommends keyhole surgery above my eyebrow, another says ear-to-ear cranial surgery, one recommends nothing but watch and wait, and my current surgeon at UCLA suggests mild radiation therapy to shrink it and possibly surgery through my sinus to remove it. All procedures come with risks. It’s been three years of anxiety not knowing what to do. In the meantime, the ringing in my ears has been debilitating and I’m faced with increasing vertigo and sinus headaches. I’m curious if anyone else has experienced the same challenges and what was your outcome.

Jump to this post

I’m sort of in the same boat.
Which doctor to choose /which approach to choose, etc. I’m waiting and watching and my anxiety and depression have turned me into someone I don’t even know. I haven’t had any energy and I cry most days. I’m on antidepressants and anti-anxiety, but I wonder if it’s the tumor causing this.
The doctors say no, bc of the location of the tumor. I was diagnosed last august and I feel like I’ve lost almost a year of my life living in fear/depression/personality changes/mood swings.

REPLY
Profile picture for ehask @ehask

I am 64 and was diagnosed 13 years ago with meningioma that started gum ball size and is now golf sized. I have no symptoms. I have been able to become comfortable with active surveillance over the years but was initially very upset and frightened. In my case it has been possible to live a normal life for years after diagnosis.

Jump to this post

I just found out I have a small one on a MRI for something else. I’m getting an appointment with a neurologist. I’m hoping for a wait and watch. Thankfully most are benign. I’m pretty scared right now

REPLY
Profile picture for robinem @robinem

Thanks for your response. It helps to know others are dealing with the same issue. My family is freaking out, as I am their "person". It doesn't seem fair to them or me to wait and watch, when they have already told me I will need to do something with it. I'm scared to death of the craniotomy surgery, but I guess I would like to get it over and move on with my life hopefully...

Jump to this post

I am 64 and was diagnosed 13 years ago with meningioma that started gum ball size and is now golf sized. I have no symptoms. I have been able to become comfortable with active surveillance over the years but was initially very upset and frightened. In my case it has been possible to live a normal life for years after diagnosis.

REPLY

That it was wonderful news however don't stop getting follow ups. It was 14 years from the time mine was found until the time it had grown large and caused strokes and emergency surgery. I failed to follow up for many years before this happened because I felt fine and assumed I was fine and didn't want to go and have MRIs done.

REPLY
Please sign in or register to post a reply.