Watching a Meningioma Brain Tumor

I had a nerve study for possible carpal tunnel. Ended up only being mild in my right hand and moderate in my left hand. So I am not going to have that surgery. My hands would “fall asleep” at night time. For me it comes and goes so it may just be the effects of arthritis. The doctor that did the nerve test said either you have it or you don’t. I am currently not having problems. I also have a left frontal convexity meningioma. I am on wait and watch. Just had 3rd MRI and waiting to see my neurosurgeon next week. I hope you can find some help and relief from your neuropathy.

I was told that I may also have polyneuropathy. The neurologist scheduled me for a nerve study the end of the month. They still don't think my symptoms are coming from my tumor, but I didn't have the tingling and numbness until after I started having scans for the meningioma.

Surgery is a way to go but you may have a slow growing tumor and if you symtems are slight you can live with it a long time. There is always risk in surgery. I had two tumors they effected my sight and I had a lot of headaches. balanace and sight. One was operatable the other is still there and is on my optic nerve. My headaches are less but my sight is a crap shoot. I had proton radiation and so far the optic tumor has not changed but you never know. The relief of having one out was nice but you are never sure what is going on with the tumor until they get in there. I didn't wait too long because my symtens were multiplying but every situation is different.

Hi, @deblee - wondering how your appointment went yesterday?

That is good. I am going to a neurologist tomorrow so will see what she has to say about my symptoms.

I have heard many different things about Keppra. I understand it is to prevent seizures. They can develop when the brain swells from surgery or from trauma because of the surgery. I hope I don’t have to go through it. I hope you start feeling better soon!

I have an olfactory groove meningioma that has been stable for 8 years and grew a little two years ago.

I had one removed in August 2009 and still have issues. Mine was on the left side near the frontal lobe. There were parts of the meningioma that could not be removed because of where it was. Because of the location I have lost nearly all of my executive functions. I have also lost most of my long term memory and short term memory. It is extremely frustrating to not be able to remember how to get to places I go on a regular basis. Many times I can get to the end of my driveway and then my mind goes blank. Thank goodness for GPS. My inability to deal with multiple tasks and retain new information forced me to quit a lucrative career and apply for disability. Now I am basically confined to home and local areas that I can get to and back home without much trouble.

I had no symptoms with my meninigioma at all. I fell and hit my head and went to the ER because I passed out. Xrays showed I didn't break anything but showed a rather large tumor. The neurosurgeon said that had I waited a couple more weeks I would have had a stoke from which I would not have recovered.

During follow up MRI's another meningioma was found in the top of the brain in the frontal lobe. So far it is not growing and the neurosurgeon says that should it start growing he will use laser surgery to remove it. I definitely don't want to go through the surgery again. I still have pain from it and my skull has not ever fully closed. My skull was taken apart in three or four different sections trying to reach all the tenticles of the tumor.

I wish you well with your recovery. Pay close attention to anything that you feel is not normal and discuss it with your doctor. If you aren't satisfied with the answers your doctor gives you demand further testing. I had to go to a neurophychologist to learn that I had mild cognitive impairment because of the tumor.

No balance issues

Yes they are benign when they don't grow fast. Only cancer cells have this potentiality. I suggest proton + radiations to target them. An MRI will tell you if they stopped growing. I am not for surgery.