Squamous Cell Vulvar Cancer: Who out there has this cancer?

Posted by bobette1 @bobette1, Oct 10, 2022

Just diagnosed a week ago. Who is out there with this cancer? Looking for advise, tips and what to expect as I start my journey. TIA

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

bobette1 | @bobette1 | Oct 3, 2024

In reply to @andwho "Your words are so encouraging!! Thank you, I will keep your advise close to heart! Hope..." + (show)

I had radiation, chemo and surgery for my vulvar cancer. I didn't develop those symptoms however I still have issues. My chemo/radiation ended March 2023. I was still having lots of discomfort. I do find it I take miralax every couple of days that does help. Also if you are offered pelvic physical therapy please do it. I know it is weird but I was having bladder leakage and once I learned how to strengthen my pelvic floor that helped. Please keep us posted on your journey.

misstrouble | @misstrouble | Oct 3, 2024

In reply to @colleenyoung "I'm tagging fellow members like @bobette1 @ljchicago @sillywabbit @jeanadair123 @annie7837 @angie0374 @crissyd @westnp1 @stolisnc30 @cjp930 @misstrouble..." + (show)

I haven't had any side effects from radiation ::knock on wood:: I am sorry
she is experiencing issues.

From
misstrouble

catlove30 | @catlove30 | Oct 2, 2024

In reply to @colleenyoung "I'm tagging fellow members like @bobette1 @ljchicago @sillywabbit @jeanadair123 @annie7837 @angie0374 @crissyd @westnp1 @stolisnc30 @cjp930 @misstrouble..." + (show)

I did, in fact, have vulva cancer. However, I never had any radiation or
treatments of any kind. My doctor was able to remove it all. This was over
five years ago and I have had no problems since then.

westnp1 | @westnp1 | Oct 2, 2024

In reply to @colleenyoung "I'm tagging fellow members like @bobette1 @ljchicago @sillywabbit @jeanadair123 @annie7837 @angie0374 @crissyd @westnp1 @stolisnc30 @cjp930 @misstrouble..." + (show)

I have not had any of these symptoms. Everything else but not this.

Colleen Young, Connect Director | @colleenyoung | Oct 2, 2024

In reply to @andwho "I possibly developed - hemorrhoids or polyps after completing vulvar cancer radiation 1 year later after..." + (show)

I'm tagging fellow members like @bobette1 @ljchicago @sillywabbit @jeanadair123 @annie7837 @angie0374 @crissyd @westnp1 @stolisnc30 @cjp930 @misstrouble @catlove30 who had treatment for vulvar cancer including radiation to share their late side effects with you @andwho.

Andwho, I understand that you've developed hemorrhoids, possibly polyps and proctitis a year after radiation. You might also be interested in this related discussion:
- Anyone been diagnosed with Radiation Proctitis?
https://connect.mayoclinic.org/discussion/radiation-proctitis/
Have you talked to your doctor about these late side effects and possible treatment? There are treatment options.

andwho | @andwho | Sep 27, 2024

Can anyone that has had vulvar cancer (no surgery) only radiation & chemo share any late side effects please!!!

andwho | @andwho | Sep 17, 2024

In reply to @andwho "I meant “proctitis”!!!!!!!" + (show)

I possibly developed - hemorrhoids or polyps after completing vulvar cancer radiation 1 year later after radiation. Does anyone else have the same issue?
Multiple late side affects!
Please share your experiences!

andwho | @andwho | Sep 5, 2024

I meant “proctitis”!!!!!!!

andwho | @andwho | Sep 5, 2024

I am a vulvar cancer survivor for 1 year but always in fear. My question is does anyone suffer with late pelvic side effects? I was fine until I recently developed an external hemorrhoid or protitis. Had anyone else experienced this?
Thanks

andwho | @andwho | Aug 25, 2024

What treatment will you be receiving?

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