Squamous Cell Vulvar Cancer: Who out there has this cancer?

@westnp1 how long ago was your treatment? How long after radiation and chemo did u start to get ur life back? I am so over this....#cancersucks

8 years ago. They gave me a 40% prognosis- don't believe them! I started radiation and chemo about a month after surgery. Radiation was every day for 6 weeks. Chemo was about 4 treatments.

@westnp1 how long ago was your treatment? How long after radiation and chemo did u start to get ur life back? I am so over this....#cancersucks

I'm a cancer survivor from squamous cell carcinoma stage 3. I found the limp in my vagina. Surgery chemo and radiation. Let me know how I can. Help.

Hola, @angie0374, bienvenida. What a beautiful picture of you. I hope you'll add it to your profile.

Angie, of course you are scared and depressed. Fellow members like @bobette1 @jeanadair123 @annie7837 and @naturegirl5 know what it is like to get bad news. You've been here before and worked hard through treatment and have been in remission for 7 years. This is hard to accept that it has come back. But you will do this for your children.

When will you get the imaging results and know whether surgery is possible or not? Sending you courage and strength.

Hola …. Acabo de ser diagnosticada con recurrencia cáncer vaginal ( Adenocarcinoma) después
De casi 7 años cáncer free .
Aparentemente cuando es recurrencia es más difícil y se requiere de una operación mayor
Si los
Estudios
Indiquen que no se encuentre en las paredes de la pelvis y si no pueden operar el tratamiento sería quimio . Estoy bien deprimida y con mucho miedo mis hijos sufren mucho ya que la quimo no lo cura . Por favor alguien que me pueda ayudar que tenga testimonio de lo que me está pasando o algo parecido quiero saber cómo le está lleno todo .

I have been dealing with a similar issue for almost two years now. Last year I was given so many antibiotics. They kept thinking it was just a infection. Mine is more in the higher area around the clitorris. It’s so painful. Having to wear lose pants all the time. Hurts to sit. I’m just feeling completely alone. I’ve been to my doctor so many times. He says this is the first time he’s seen this. He doesn’t think it’s cancer but I do. He did a small surgery thinking it was an infected cyst. That was in Nov. Everything seemed better until last week. I felt the same little bump/pebble and then a few days later it was inflamed and feeling like it was going to rupture. I’ve been sick for several days. My side hurts all the way around to my back. So glad to have found this group.

Hello,
Currently awaiting my online appointment with my surgeon. Have had biopsy, CT and PET scans.
Trying to avoid tight pants, lol! So far just minor discomfort, but of course I am more aware since my diagnosis.
I am a 3- Day walker for Breast Cancer....so of course I get diagnosed with something I never even new existed!
I had been sharing with the nurse and PA how absolutely blessed I was to be so healthy and able at 61 to be participating in a 60 mile walk. Then the other shoe dropped, I guess. I agree with the previous comment that practitioners should share what they are looking for. I knew I had this "thing" down there for a while. Thought maybe my old episiotomy scar was irritated. Meant to ask about it and forgot until she asked me about it. Had I been better informed, I may not have waited.
We will see what that costs me once staging is complete.
Thank you for being here. Nobody knows except my husband yet.

Welcome @annie7837. I'm sorry to hear that you are in such pain and still have 3 weeks until surgery. I'm glad that the tumor has shrunk thanks to radiation and chemo treatments to make the operation possible. Is the pain from the tumor or from radiation or both?