Squamous Cell Vulvar Cancer: Who out there has this cancer?

Please, get another medical opinion. I waiting to long to see one. But so gald I did see one. I am still going through my journey of having Vulvar cancer...

I recently was diagnosed with VAIN1 after abnormal pap. I have no cervix so diagnosis was very surprising. Then, when the internal biopsy was being completed the Gyno doctor said you have vulva lesions and would like your dermatologists (never would have thought derm doctor) to biopsy the lesions to check for melanoma. Just had Melanoma and Basil surgery on my back in Oct 2023. Had no idea you could get melanoma where no sunshine is involved. The biopsy on the external sounds very painful compared to internal. Jan 25th will have biopsy. Read can take two or three weeks to heal from biopsy. Does that sound right?

How are you doing?

I have melanoma vulvar cancer. Had first appt. at Mayo Dec.6th and they took out ulcerated tumor to biopsy and found that it was melanoma vulvar and had a radical vulvectomy seven days ago. They did a sentinel node biopsy, took out the lymph node and it was clear. I go back to Mayo tomorrow morning for my check up. Was hoping to get the drain out but it has to be below 20 cc a day for two days and I am still over 300 cc for one day! They said not to worry and it could stay in two to three weeks to get fluid out so there is less of a chance of lymphedema in my legs. Recovery should take four to six weeks and I will be monitored closely after that for a recurrence but so far, I have been extremely impressed with Mayo Clinic and am happy I am there!

Yes. That's me. 2 lymph nodes positive. USING HRT. Radiation and chemo. I found this stage 3 when I was changing out my fem ring HRT. Almost 10 YEARS ago. They gave me 4 years. Chemo and mostly radiation. I'm doing fine except for the lymph edema. I have annual paps

Hi. I was using HRT when I got the diagnosis. Please respond. Bartholin gland carcinoma.
2 Lymph nodes positive and they removed 7. I have lymph edema.

Artist64
I had Bartholin gland carcinoma. 2014. Seven lymph nodes removed.
You are the only one I have ever heard from with the same cancer.

Welcoem @kat250, you can read more about @westnp1's experiences by seeing all their posts here: https://connect.mayoclinic.org/member/00-854d21eed0d4666d318169/activity/comments/

I also hope they'll return to answer your questions. In the meantime, I look forward to learning more about you and your journey. I see you've had a vulectomy. What further treatment has been recommended due to the sentinel lymph nodes proving to be positive? How are you doing?

Hi westnp1, I saw your post about SCC, stage 3. This is me! I already had vulectomy with sentinel nodes positive on both sides. Can you tell me your story, journey and how you are now doing?

Does anyone have any recommendations to help with the pain and burning? I have Lidocaine spray and gel but neither helps very much. The tumor is very fast growing and the larger it gets the more painful it is to sit, walk or even lay. I am scheduled for surgery on October 23 and the surgeon says “the only thing that will help with the pain is the surgery “, which is still 4 weeks away.
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