Squamous Cell Vulvar Cancer: Who out there has this cancer?
Just diagnosed a week ago. Who is out there with this cancer? Looking for advise, tips and what to expect as I start my journey. TIA
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Hi, Annie..have you tried any pain relief cream? I started with Neosporin w/pain killer in it..but I ended up getting a script from my Dr for lidocaine..spendy way to get it tho, amazon has versions of it for cheaper. I had lived with a growing tumor on the left side of my Vulva for over 10 years. I knew what it was and knew what caused it but I didn't have insurance, then it started really growing (embarrassment kept me from going in at that point, I was also in denial. I figured that it wasn't really gonna happen…fueled by thinking..I'm SPECIAL..I ALWAYS scooch by trouble at the last minute because of crazy chick luck. First time in my 54 years that I didn't side-step trouble in time to avoid falling face first in this mess ). I'm stubborn, kept it hidden from everyone around me until about 5 months ago..it began changing..and it hurt. Sitting was uncomfortable. Just to go the bathroom I had to put lidocaine on the tumor (it burns pretty bad then numbs it . .it's not that bad tho if u put just a tiny bit on your finger..touch a spot u want the pain to dull and just hold it til it doesn't burn..it numbs a small area around it a bit too..so it doesn't hurt like it would if u just tried to rub it on like lotion. I couldn't keep quiet enough during trips to bathroom to keep it hidden any more. I was also having shock sensations down my leg. I finally broke down and went to a clinic. I don't recommend waiting like I did…not the smartest thing I have done. Once I had the biopsy..it woke the beast and the pain was enough to make me follow through I HAD to get that thing off me. The doctors fast tracked me through appointments…and Radical partial vulvaectomy was done (I am still waiting for the last of my stitches to disappear) took my clit in the deal, and I'm still swollen..not sure what the end result will look like..BUT I'm not the least bit concerned with THAT now…..I want to find out from someone beyond this point….and find a way to make a decision about treatment…ugh. Good luck! Hope the cream works for you…also, sitting less helps. I lean over the back of my office chair..it's easier on the booty if you have a surgery like I did too. I still do a lot of standing and walking. Good luck
They gave me a medical healing salve and it's was good. I was not burnt until the end of the tx.
westnp1 Can u tell me how you got thru the radiation when everything is sore, inflamed and burnt. To try and go to the bathroom is horrible. Still have 6 radiation and 2 chemo to go.
I did not use a fem ring.
We're any of you using a fem ring? I think that what caused my cancer but i cant prove it.
And I wasn't too tired until the end!
8 years ago. They gave me a 40% prognosis- don't believe them! I started radiation and chemo about a month after surgery. Radiation was every day for 6 weeks. Chemo was about 4 treatments.
@westnp1 how long ago was your treatment? How long after radiation and chemo did u start to get ur life back? I am so over this….#cancersucks
I'm a cancer survivor from squamous cell carcinoma stage 3. I found the limp in my vagina. Surgery chemo and radiation. Let me know how I can. Help.
Please keep us posted ….I feel very alone too as not many out there with vulvar Squamous cell carcinoma. Sounds like something similar. Please get another opinion. I get the loose pants pants and nearly impossible to sit. I have stage 3 and had surgery in November and am just at halfway thru Chemo & radiation now. I can tell u this I can't wait to be able to sit down again without caution. Please keep in touch.