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Vulvar Cancer: Anyone else?
Hello:
I have posted on other discussion group about my struggle with my health, previous cancer stories and concerns for my genetic history. I can’t seem to get a break. I just had a biopsy today to rule out vulvar cancer. I honestly didn’t even know there was such a thing. Has anyone been diagnosed with this and is it more common than what I have been reading?
I am BRCA2 and MSH6 positive. 2 time breast cancer and ovarian cancer survivor I have lived a drug and alcohol free life it just doesn’t end!
Alice
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Hello,
I had surgery yesterday in Walnut Creek, California Kaiser for an INGUINAL SENTINEL LYMPH NODE BIOPSY - Bilateral - GroinVULVECTOMY RADICAL.
My pet scan showed negative for any disease in lymph nodes.
I am just wondering if anyone has had surgery and everything looks good and then it metastasized to a different area and how long it took?
Also has anyone used immunotherapy instead of radiation?
Were you itchy & irritated from a yeast/fungal infection? Is that why your doctor prescribed it?
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1 ReactionWhat cream are you using & for what symptoms?
Thanks for any feedback.
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1 ReactionI suffer the same. I am 2 years out from surgery/chemo/radiation for stage 3 vulvar cancer. I did have some lymph nodes removed too. Unfortunately my Dr said it is my new "normal". The cream does help some in the moment. Vulvar cancer is a form of skin cancer so I am glad they finally took a look at your mole. I pray for a successful surgery for you.
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1 ReactionI was diagnosed with vulvar cancer stage 1b in may 2023.
I’ve been cancer free since but have suffered with a lot of soreness, tendeness. I now have a lot of itchiness & Inflammation. I saw my oncologist 2 weeks ago. She suggested vulvar cream but that is not helping. What is going on! Is this just another Side effect? Maybe pagers???
I have a paget's disease of the vulva and had to have surgery
No diapers involved. I don't know what that could be. And no this is not our fault. I am now using Imiquimod and feeling tired but hopeful to not have to have surgery again right now. And, every day is a new normal
@komiskey10 So all good news for you. Congratulations that nothing new showed up in the scans.
Sorry for the confusion. I meant scans were positive for me. They were negative for disease in lymph nodes or other areas. The scans showed activity in my thyroid. I have cysts and nodules, but have been battling that issue for 10 plus years.... He had me send it to my endocrinologist. Pelvic MRI showed cysts on my ovaries and in my uterus. Thanks for asking.
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1 Reaction@komiskey10 This all is good news. I’m curious, though. When you noted that the pelvic MRI and PET were “positive” did you mean No Evidence of Disease? In that case, the scans would be negative for disease. Did the scans shows anything?
So my PetScan and pelvic MRI were for the most part positive. I am having partial vulvectomy surgery on March 10. During my office exam, the mole that other doctors said was just a mole didn't look right to my Mayo doctor, so he biopsied and it has been confirmed as malignant, so will be having that removed as well. I am not sure what will happen going forward other than repeat exams and scans, but I feel fortuate that things will not be as horrific as I was first told. I am anxious about missing something going forward. The first "lesion" was so tiny and the second a small mole. I need education on what I need to look for! Thank you all for your kind words and prayers, I feel blessed to have you all as a sounding board.