Vulvar Cancer: Anyone else?

Posted by ali1974 @ali1974, Nov 12, 2020

Hello:
I have posted on other discussion group about my struggle with my health, previous cancer stories and concerns for my genetic history. I can’t seem to get a break. I just had a biopsy today to rule out vulvar cancer. I honestly didn’t even know there was such a thing. Has anyone been diagnosed with this and is it more common than what I have been reading?
I am BRCA2 and MSH6 positive. 2 time breast cancer and ovarian cancer survivor I have lived a drug and alcohol free life it just doesn’t end!

Alice

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

bobette1 | @bobette1 | Apr 4 10:24am

In reply to @andwho "Anything OTC?" + (show)

I don't have anything over the counter but I bet you could use Motrin for swelling and there must be some sort of steroid cream OTC. maybe ask a pharmacist. Sorry I can't be of more help.

andwho | @andwho | Apr 3 3:49pm

In reply to @andwho "Anything OTC?" + (show)

Anything OTC??

andwho | @andwho | Apr 1 1:04pm

In reply to @bobette1 "Yes I use clobetasol for flare ups." + (show)

Anything OTC?

bobette1 | @bobette1 | Apr 1 11:21am

In reply to @andwho "Thank you for responding & sharing. Do you use any creams or anything to help?" + (show)

Yes I use clobetasol for flare ups.

andwho | @andwho | Mar 31 9:49pm

In reply to @bobette1 "I had surgery/chemotherapy/radiation for vulvar cancer and finished treatment in March 2023. I still suffer from..." + (show)

Thank you for responding & sharing. Do you use any creams or anything to help?

bobette1 | @bobette1 | Mar 31 5:39pm

In reply to @andwho "Thanks for your help. I did not expect to still be experiencing itchiness tenderness & soreness...." + (show)

I had surgery/chemotherapy/radiation for vulvar cancer and finished treatment in March 2023. I still suffer from sensitivity down there and am told this is my new normal. I have found the donut cushions help with sitting. I hope this helps. Boette

andwho | @andwho | Mar 30 8:17am

In reply to @wheaton "I still experience itching and discomfort 6 years after radiation. Believe or not, baby wipes help!..." + (show)

Is the itchiness, soreness & tenderness normal after all that time ? I am experiencing the same after almost 2 years, is this the new normal?
Wasn’t expecting to still be tender down there!

lrcg | @lrcg | Mar 29 1:51pm

In reply to @andwho "Thanks for your help. I did not expect to still be experiencing itchiness tenderness & soreness...." + (show)

There is a private fb group called myempd, get on it, it is a wealth of information. It has changed my life to have the support with others. You will hear some inspirational stories that will encourage you to keep seeking answers. This is what is helping me. I see a new Dr this week. I ebb and flow with my progress. As to what Drs tell you...they just dont know and everyone seems to be a bit different.

andwho | @andwho | Mar 29 11:41am

In reply to @lrcg "I have Pagets but so far no other cancer. A biopsy will tell you for sure...." + (show)

Thanks for your help.
I did not expect to still be experiencing itchiness tenderness & soreness. I guess I’ll never be the same down there & this is the new me. Do your doctors tell you this normal?

lrcg | @lrcg | Mar 26 8:49am

In reply to @andwho "I was diagnosed with vulvar cancer stage 1b in May 2023. Not a candidate for surgery..." + (show)

I have Pagets but so far no other cancer. A biopsy will tell you for sure. I first has excision of my right labia which I dont recommend. When it cane back I used Imiquiod for 3 months it worked but Pagets keeps popping up. Finding a doctor that will try something besides surgery in nearly impossible. Maybe you have lichen sclerosis ? Good luck with it all. I tell myself it could be worse.

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