Vulvar Cancer: Anyone else?

Posted by ali1974 @ali1974, Nov 12, 2020

Hello:
I have posted on other discussion group about my struggle with my health, previous cancer stories and concerns for my genetic history. I can’t seem to get a break. I just had a biopsy today to rule out vulvar cancer. I honestly didn’t even know there was such a thing. Has anyone been diagnosed with this and is it more common than what I have been reading?
I am BRCA2 and MSH6 positive. 2 time breast cancer and ovarian cancer survivor I have lived a drug and alcohol free life it just doesn’t end!

Alice

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

andwho | @andwho | Apr 28 7:34am

Yes my flare up’s come & go about that often also!

bobette1 | @bobette1 | Apr 27 7:13pm

In reply to @andwho "How often do you have flare ups & use clobetasal ?" + (show)

It just depends.....flare ups come and go. Depends on how active I am. At least once a week.

Helen, Volunteer Mentor | @naturegirl5 | Apr 26 4:01pm

In reply to @leahchawkins "Thanks! I’m nervous … as we all are. I’m scheduled for a breast MRI on Sunday..." + (show)

@leahchawkins I can understand the nervousness. I am almost loathe to say this but really anxiety seems pretty normal to me given the circumstances. No one wants to go through this and who wouldn't be very nervous? Is the "hot spot" that showed up in your breast on the PET scan something new you didn't know about? I'll be thinking of you and hoping that the breast MRI is negative for disease. Let me know what you find out, OK?

andwho | @andwho | Apr 26 3:27pm

In reply to @bobette1 "I don't have anything over the counter but I bet you could use Motrin for swelling..." + (show)

How often do you have flare ups & use clobetasal ?

leahchawkins | @leahchawkins | Apr 25 6:41am

In reply to @naturegirl5 "@leahchawkins I somehow missed your post of last week that you have an appointment coming up..." + (show)

Thanks! I’m nervous … as we all are. I’m scheduled for a breast MRI on Sunday night due to a hot spot showing up on my PET scan, so there’s that.😊 I appreciate you reaching out.

Helen, Volunteer Mentor | @naturegirl5 | Apr 24 5:43pm

In reply to @leahchawkins "I have squamous cell vaginal cancer due to HPV. In 1995 I had a total abdominal..." + (show)

@leahchawkins I somehow missed your post of last week that you have an appointment coming up tomorrow in radiation oncology. I'll be thinking about you tomorrow. I am hoping that the appointment helps you figure out the approach that will work the best for you in your life. I realize these are very big decisions.

Colleen Young, Connect Director | @colleenyoung | Apr 24 9:32am

In reply to @leahchawkins "I have squamous cell vaginal cancer due to HPV. In 1995 I had a total abdominal..." + (show)

@leahchawkins thinking of you as you prepare for your appointment tomorrow. I'll be interested to hear what treatment options will be available for you.

Colleen Young, Connect Director | @colleenyoung | Apr 23 4:06pm

In reply to @needhelp25 "My 88 year old mother will start radiation in one week and have 15 treatments over..." + (show)

@needhelp25, you're asking great questions. You might also be interested in this related discussion:

- Vulvar cancer radiation: Helpful tricks & tips to manage pain? https://connect.mayoclinic.org/discussion/vulvar-squamous-cell-cancer/

See other radiation related discussions here: https://connect.mayoclinic.org/group/gynecologic-cancer/?search=radiation&index=discussions

Have radiation treatments begun? How is your mom doing?

leahchawkins | @leahchawkins | Apr 15 3:31pm

I have squamous cell vaginal cancer due to HPV. In 1995 I had a total abdominal hysterectomy due to HPV…. And it’s back.
Surgery is not an option as the tumor abuts my urethra and there is not enough tissue to obtain clear margins. Don’t want a permanent urostomy bag, so I have an appointment April 25 with radiation oncology to discuss radiation and chemotherapy and chemoradiation. Possibly 6 weeks….

needhelp25 | @needhelp25 | Apr 14 1:31pm

My 88 year old mother will start radiation in one week and have 15 treatments over 3 weeks. She is legally blind, almost deaf even with hearing aids, and is experiencing cognitive decline over the last couple of months. I am trying to get ready to treat her side affects. Will she have side affects immediately? Aquaphor and sitz baths were suggested at the radiology consultation. Can she use lidocaine on the treated area? Are there any suggestions for the sitz bath ingredients? Any other warnings or suggestions?